Hard to say without knowing how your epilepsy affects you. There are some jobs you probably can't do if it's not under control, like anything operating heavy machinery.
Consider not telling potential employers about it though. You're under no obligation to, and it can wait until after you've got the job. Try this advice from Epilepsy Action. They also have a helpline you can call.
You’re mad advising them not to disclose a medical issue.
Company wouldn’t be insured if you had an accident. You’re also WIDE open for a manslaughter charge if you potentially kill someone.
There’s a reason the DVLA offer medically restricted licenses to epileptics and will require full surrender of said license if an awake seizure has happened in the previous 12 months.
That's why I said potential employers and it can wait until after they get the job. I'm talking about the application process. They aren't required to disclose their disability when applying but may need to when employed.
Yes and no to considering not saying anything. If my workplace didn't know about my bipolar diagnosis, they could have fired me over absences but I was protected.
The amount of time I've spent on applications on that question "do you have a disability?" just agonising over what to say is probably more than the actual application!
For where I work, under the guaranteed interview scheme, if you tell them you have a disability and you hit the minimum requirements for the role, youre guaranteed an interview.
Ive never been asked what my disability is either.
I am expat in Sweden, my husbands job is office based in IT for local council. It is paid 25% by a similar scheme they had here. He lost his factory based job in 2002. Did some education, worked at school as support worker for a while but pretty much wasn't getting past interview stage. If they could choose 100% healthy person over someone who is possibly going to need random days off then healthy will always win imo. Was same experience when I worked as RN and had to take medical retirement at 25.. HR said no one would want someone with my sickness history. ( have CRPS/ RSD causing constant leg pain since 1992)
My partner doesn't lose pay for first day off work like is typical here and works from home maybe once every couple of weeks. Its about fitting him in to a job role rather than changing the job. Been with this organisation since 2007 now, likely there will retirement in 12 yrs too.
Have been applying for so many jobs recently and have been ticking this where it’s a thing and never got an interview. Managed to get something else disclosing my autism but it’s difficult to know what to do for the best
May I ask what type of work you do with your bi polar? My mum has it and struggles to find work because she used to be a teacher but with her psychotic phases - she obviously doesn’t work with kids anymore.
There's a difference between not telling the employer during the process of getting the job but telling them when you have the job and not telling them at all even after you got the job.
It would depend on your symptoms and triggers. I have an acquaintance who gets 2-3 seizures per day, regardless of specific triggers. They do data entry from home and gets financial support from our government.
On a side note, if you indeed can't get a job nor support, I am surprised by how bad job rights and job security is in this country which is supposed to be in Europe not America... The lack of livable law protected sick pay was already shit to learn about.
My husband has had epilepsy since a teen..he works in IT in a council office.
He perhaps has a seizure at work twice a year these days. They have pillow and paper in his room, and my phone number is on his door. Someone usually hears him and makes him safe while another calls me. Sometimes freaks out newbies who call and ask if he needs an ambulance, but we've avoided that over last 20 yrs. He has seizure out in town getting lunch alone once... then I had to collect from hospital. He takes food from home these days. Lol
Potential employers who see people with epilepsy as an insurance and health and safety liability, are not the type of people anyone should work for, especially of they're ignoring the 2010 Equalities Act.
Your best bet is to look at companies or organisations who are equal opportunities employers. Look at places that disply the Disability Confidence logo. The NHS and local councils display the logo so it might be worth starting there and looking at positions that you feel would suit you.
I'm a software engineer. I used to do that in an office but since COVID I've been able to do it from home. Having full control of my environment has been a huge help. I wouldn't necessarily recommend software engineering but finding something you can do at home should help.
There's a great community in the epilepsy subreddit. I highly recommend spending some time there. Maybe you could cross post.
Try bigger firms, the NHS, or the civil service or council jobs. They're in a better position to support you with access to occupational health and fully qualified HR departments. They'll treat you well and know better than to discriminate and even have all the risk assessments and policies in place so they won't even be phased by it
Epileptic here (tonic clinic) it's controlled, most jobs are are available I've done work in Amazon, IT, and most recently I'm now in the Prison service I didnt think i could but hey I'm here!
This is the side epilepsy really got me down as I wasnt diagnosed from birth and was later developed so the realisation really hit hard. My original plan was the military as a Pilot/ air crew. Back up was airline pilot or ATC I wanted to do many things such as skydiving and I still do.
But at some stage you have to just stop fighting and accept it I won't lie I initially attempted to lie to the armed forces but in reality I was selfish and I'm glad I called up and coughed up.
I don’t have epilepsy but something similar - I’m a copywriter and work from home. Anything similar would be good for you (though maybe not wfh if you have seizures often).
Essentially you need to rule out working from heights, with machinery/knives/heat etc, and maybe caring for vulnerable people - but there’s nothing stopping you doing admin or sitting in meetings.
Seconding what others have said, you don’t have to disclose during the interview/onboarding stages - and honestly I wouldn’t. It sucks but people do hear disabilities and panic. Get the job and let them figure it out later, you’re protected at that point :)
When you can, reapply for PIP but do some research into the criteria for support. There are some useful resources out there.
My adult daughter is SEND but also has refractive epilepsy (meds do not stop the seizures) she did get PIP so her situation is different and also has LCWRA.
That said she volunteers at an animal sanctuary. They did a full health a safety review and have qualified first aiders at the rescue. She loves it and in time, is looking at working part time with animals.
When it comes to epilepsy and working you need to know what your triggers are. For my daughter, stress, flashing lights, autistic meltdowns, anxiety all trigger her.
Think about how many seizures you have per day/week. Are their triggers?
Search for disability confident employers, most job searches now allow you to search for them.
Think about apprenticeships.
If you were denied PIP, did you look at mandatory reconsideration? Have you looked at applying for a WCA with UC? Did you get the assessors report from PIP explaining why you did not get enough points?
Thankfully she has not had a seizure while volunteering there (yet) as the staff know her triggers and make sure she isn't exposed to them. We also know when she is tired (as that is another trigger) that she doesn't go in.
That said, our rescue dog who has zero training in seizure detection knows 5 seconds before she drops. Animals are truly amazing.
A lot of people are recommending desk jobs, creative jobs, admin etc. These are all safer for you to do, but if I were you, I'd also consider how the epilepsy (and/or medication) affects you mentally. I've heard some people say the meds and the seizures themselves make them tired, unable to focus, forgetful, brain fogged etc. If these apply to you, and you feel you wouldn't be able to do a desk job because of that, do go back to your doctor and discuss your options. The people who decide your PIP do not have an interest in making it easy for you to get it. It's on you to prove you can't do (certain) jobs, and they will fight you.
When you were let go due to epilepsy, did they first make you have an occupational health and risk assessment? You've not really given clear information about how your epilepsy affects you.
My friend has severe epilepsy and she got a job stacking shelves in Asda on a late/ night shirt. They were super accommodating to her sensory needs. Might be worth talking to an epilepsy charity about what employers are sympathetic to the condition.
I have epilepsy too but I don't bring it up until I'm already hired and signed contracts, I don't even like applying using the "disability confident scheme" because it could be easily biased
There are numerous people in my company who have epilepsy, but I suppose it can effect everyone differently. The ones I work closely with take daily medication, but work in pretty high end tech roles.
If you are in such a place that you cannot function or look after yourself then clearly, work would be low down the list. But if it is a condition that is managed there are lots of roles you can do from home.
Remember, PIP is not awarded based on diagnosis, rather how it impacts your life. If you need to apply again, focus on the impact on life not the title of illness. The citizens advice site is excellent for guidance.
Obviously I’d not go for anything that involves driving, unless you’ve been fit free for years. It’s probably also best to keep away from any jobs that involve lone working, such as nights on a hotel reception desk, or anything involving handling machinery. You have to think of the risk to yourself and others if you fit while in work.
I’d look at the bigger employers to be honest, big companies that have occupational health departments. Councils, NHS, civil service, main supermarket chains. Don’t mention your epilepsy until you complete a health declaration for occupational health - then be very honest. They are unlikely to say you can’t have the job, what they will advise is risk assessments. If you work in a call centre or an office job there are fewer risks than if you’re working with machinery, hot plates or up a ladder!
The epilepsy society has some useful info about epilepsy and work. https://epilepsysociety.org.uk/living-epilepsy/employment
one of my friends with epilepsy has their own business and makes crochet plushies/items!!! she sells things online but also sells things at different market stalls as well as claiming the social help she can get
My cousin has epilepsy. She has a major seizure that will require a hospital visit a couple of times a year. Other than that she's generally ok. She obviously can't drive and has to take medication to sleep along with her epilepsy medication. She's a solicitor.
I’ve got epilepsy and I’m a journalist now. I used to work as a copywriter and then did office admin before that. Also got a background in bar work.
You can pretty much do anything! Honestly, I just wouldn’t mention that you have epilepsy if you don’t get seizures on a regular basis and it’s affecting your confidence.
It really just depends how bad it is and whether your condition is relevant. For example, I mentioned it when applying for my current job as driving was a requirement. I explained I can’t drive at the moment due to my condition. They sorted me out with a WFH position.
Many employers will work with you if they think you’re capable. I wouldn’t write yourself off. Just think about what your skills are and perfect your CV like everyone else.
PIP has nothing to do with employment and you can theoretically receive it whilst working full time. Have you applied for universal credit? They should be able to both help financially and offer support and guidance on finding suitable work, including with disability confident employers.
Most office/admin jobs should be fine.
I've worked with a couple of epileptics over the years, and there's sometimes a team email and a pillow kept near their desk if they need it, and a few people briefed to help out if needed.
I am an office worker in the energy industry and I work with two epileptic people. As a first aider I have their plans although in 5 years neither has needed it. My teammates who are in customer support roles (I'm more specialised) came from many places - a pharmacist, someone who worked in a taxi rank, a nurse, someone who worked in a shop, a radio DJ - what matters is ability to learn and openness to question and admittance of mistakes.
I work in retail and have worked with 2 people with epilepsy one at my last job and one at my current job, neither told the employer, my son has epilepsy so I understand what its like he's 15, hope you okay xx
I used to know a naval engineer with epilepsy. His condition was well controlled with medication, but he was a bloody miserable, abusive sod to his family.
My mum has epilepsy and had someone to support her through the PIP process because her case is so severe she's unemployable nowadays. I believe the person was a professional advocate but can't remember if they were from Citizen Advice or her local council. It's worth contacting both, and any charities that offer advice/support.
The advocate collected evidence that none of the local employers would hire her due to her epilepsy and disabilities. In her field that she has experience in (schools) and other sectors.
But it does depend on how severe your epilepsy is, I have a childhood friend whose kept his under control so he can drive, he goes snowboarding, and maintains a career (I want to say in advertising). So having epilepsy isn't an automatic reason not to work. I'm fairly certain you do not have to reveal anything at the early stages of a job application, especially if the job doesn't involve things like operating machinery, or taking care of children/vulnerable people, or lone working. Good luck, I hope you find the guidance you need.
I have epilepsy, I thought the only thing I'd be barred from was certain types of industrial work, or driving jobs (even though I can now drive). Surprised you even could get let go from a kitchen for this - they should put something in place for you? Depends on how it affects you and the finer details I guess.
I've got epilepsy and I've had loads of jobs. They made reasonable adjustments since they legally have to under the Equality Act - for me this just meant no lone working. It really depends how frequent your seizures are and how debilitating, I was having 2-3 tonic clonics a month at my peak with some focal seizures in-between, but I've always had an aura beforehand to stop what I'm doing.
Jobs where a seizure would impact your safety or those around you are obviously a no go, but people can't discriminate against you for it in terms of recruitment. Try find Disability Confident Employers, they're part of a scheme where you're guaranteed an interview if you meet the essential criteria.
I'm not going to say having seizures didn't impact me in terms of work, but I'm still able to have a full time job and progress in my career. Took me about 12 years to get a formal diagnosis and I've now been seizure-free for just over a year.
This is so right but wrong. You don't, no. But you need to tell them if your epilepsy is a potential risk to yourself such as a driver or working with machinery.
I had a client once who told me they had epilepsy. Office based job, their employer also made accommodations so they weren’t on any of the on call rotas (I can’t remember if the seizures were more likely if they worked overtime or it was more prevalent at night). The conversation came up because of the on call rotas and all their colleagues knew about their exception and why.
I have an epileptic friend who stocks shelves. She can’t manage anything more challenging because of her cognitive issues. I guess it really depends on your specific epilepsy and how it affects you.
Dependa on how it affects you, I've worked in fast food, engineering and call handling all while having epilepsy. The only thing it stops me doing, which I wanted to do, is the military
Legally, you do not have to disclose your epilepsy in an application or interview, unless you need reasonable adjustments for the interview itself. Many people find success by disclosing after they have been offered the job, once they have proven their capabilities.
Unless you're applying for your pilots licence, you're not required to be upfront.
I was also not given a permanent contract in my temp job in food work (spar deli) partially because I started having (likely non epileptic) seizures during the time I worked there. I had a few on the way to work a few times and had to go to a&e to get checked out for them and dizziness/falls so I couldn't go to work some days. Sucks because I can't drive (for obvious reasons) or a bunch of other stuff. I haven't had a job since then (last summer).
Since October last year I've been volunteering my graphic design and marketing skills from uni doing social media for a charity at home so I can get an office or remote job in my degree fields because I'm also cursed with being a young graduate with little experience.
I would say that jobs that could be dangerous / cause damage by having a seizure (such as a cook dropping hot pans or full dishes or not being able to turn the heat off whilst cooking) may be best avoided.
Likewise jobs where suddenly having a seizure may be dangerous for others (such as the staff who take 999 calls and need to either direct emergency services to help or directly help the caller through their emergency) may not be the wisest choice.
But a lot and lots and lots of jobs, particularly office based ones, should be fine. I certainly have friends who are epilectic and hold down office jobs (of a very wide variety) without any issue.
Wishing you best in working out the right role for you and finding a suitable job.
Epilepsy is a broad term, ranging from regular falling down fits to minor absences or once in a blue moon fits so that's something you've not explained.
In my family, it's been a case of taking any job you can that isn't outright dangerous i.e get the job and then tell them.
Lots of advice here but without knowing more about your epilepsy it's hard to say. I'm a support worker for a gent with uncontrolled epilepsy. You'd never pick him out in a group of people but he can have a seizure at anytime and he gets pip and support workers funded. I know this probably isn't the case for yourself but you have to understand your epilepsy before you can decide what's the right role for you in the workplace.
You’re not unemployable, you just can’t safely do certain jobs, and that’s a massive difference.
Plenty of people with health conditions work, they just need the right kind of role. A kitchen probably isn’t it, but that doesn’t mean there’s nothing else out there. Office work, admin, customer service, remote jobs, reception, stuff like that could all be options.
To be honest, it sounds like you’ve been badly supported and made to feel hopeless, which is awful. But none of this makes you useless or a write-off. You still deserve the chance to work and have a normal life.
You can work in many roles with epilepsy like admin, remote jobs, retail, tech, or creative work focus on positions with safe environments and supportive employers, and don’t be afraid to ask for reasonable adjustments while building skills that make you stand out.
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HarissaPorkMeatballs@reddit
Hard to say without knowing how your epilepsy affects you. There are some jobs you probably can't do if it's not under control, like anything operating heavy machinery.
Consider not telling potential employers about it though. You're under no obligation to, and it can wait until after you've got the job. Try this advice from Epilepsy Action. They also have a helpline you can call.
Browntown-magician@reddit
You’re mad advising them not to disclose a medical issue.
Company wouldn’t be insured if you had an accident. You’re also WIDE open for a manslaughter charge if you potentially kill someone.
There’s a reason the DVLA offer medically restricted licenses to epileptics and will require full surrender of said license if an awake seizure has happened in the previous 12 months.
HarissaPorkMeatballs@reddit
That's why I said potential employers and it can wait until after they get the job. I'm talking about the application process. They aren't required to disclose their disability when applying but may need to when employed.
AreaMiserable9187@reddit
Yes and no to considering not saying anything. If my workplace didn't know about my bipolar diagnosis, they could have fired me over absences but I was protected.
HideousTits@reddit
As a chef I have never disclosed my bipolar disorder upon application of employment. I’ve never kept it a secret once employed though.
It can be hard to pretend that social stigmas don’t exist when it impacts your employment chances.
AreaMiserable9187@reddit
The amount of time I've spent on applications on that question "do you have a disability?" just agonising over what to say is probably more than the actual application!
jinkx725@reddit
For where I work, under the guaranteed interview scheme, if you tell them you have a disability and you hit the minimum requirements for the role, youre guaranteed an interview.
Ive never been asked what my disability is either.
tia2181@reddit
I am expat in Sweden, my husbands job is office based in IT for local council. It is paid 25% by a similar scheme they had here. He lost his factory based job in 2002. Did some education, worked at school as support worker for a while but pretty much wasn't getting past interview stage. If they could choose 100% healthy person over someone who is possibly going to need random days off then healthy will always win imo. Was same experience when I worked as RN and had to take medical retirement at 25.. HR said no one would want someone with my sickness history. ( have CRPS/ RSD causing constant leg pain since 1992) My partner doesn't lose pay for first day off work like is typical here and works from home maybe once every couple of weeks. Its about fitting him in to a job role rather than changing the job. Been with this organisation since 2007 now, likely there will retirement in 12 yrs too.
pajamakitten@reddit
I still never trust that. It is very easy to say you are supportive of those with a disability; it is another thing to actually practise it.
gameofgroans_@reddit
Have been applying for so many jobs recently and have been ticking this where it’s a thing and never got an interview. Managed to get something else disclosing my autism but it’s difficult to know what to do for the best
Lazy_Cat1997@reddit
May I ask what type of work you do with your bi polar? My mum has it and struggles to find work because she used to be a teacher but with her psychotic phases - she obviously doesn’t work with kids anymore.
AreaMiserable9187@reddit
I work in digital marketing, specifically managing a team of writers and editors so in an industry with a lot of creatives who ‘get it’.
elhazelenby@reddit
There's a difference between not telling the employer during the process of getting the job but telling them when you have the job and not telling them at all even after you got the job.
AreaMiserable9187@reddit
That's true that's a fair point.
AdStreet2795@reddit
My partner has epilepsy and makes a lot more money than I do working from home doing something fancy with spreadsheets.
KeyJunket1175@reddit
It would depend on your symptoms and triggers. I have an acquaintance who gets 2-3 seizures per day, regardless of specific triggers. They do data entry from home and gets financial support from our government.
On a side note, if you indeed can't get a job nor support, I am surprised by how bad job rights and job security is in this country which is supposed to be in Europe not America... The lack of livable law protected sick pay was already shit to learn about.
tia2181@reddit
2-3 a day needs reassessment of medical management, especially if grand mal seizures.
tia2181@reddit
My husband has had epilepsy since a teen..he works in IT in a council office. He perhaps has a seizure at work twice a year these days. They have pillow and paper in his room, and my phone number is on his door. Someone usually hears him and makes him safe while another calls me. Sometimes freaks out newbies who call and ask if he needs an ambulance, but we've avoided that over last 20 yrs. He has seizure out in town getting lunch alone once... then I had to collect from hospital. He takes food from home these days. Lol
Jaded_Leg_46@reddit
Potential employers who see people with epilepsy as an insurance and health and safety liability, are not the type of people anyone should work for, especially of they're ignoring the 2010 Equalities Act. Your best bet is to look at companies or organisations who are equal opportunities employers. Look at places that disply the Disability Confidence logo. The NHS and local councils display the logo so it might be worth starting there and looking at positions that you feel would suit you.
eplp101@reddit
I'm a software engineer. I used to do that in an office but since COVID I've been able to do it from home. Having full control of my environment has been a huge help. I wouldn't necessarily recommend software engineering but finding something you can do at home should help.
There's a great community in the epilepsy subreddit. I highly recommend spending some time there. Maybe you could cross post.
srm79@reddit
Try bigger firms, the NHS, or the civil service or council jobs. They're in a better position to support you with access to occupational health and fully qualified HR departments. They'll treat you well and know better than to discriminate and even have all the risk assessments and policies in place so they won't even be phased by it
Baron250@reddit
Epileptic here (tonic clinic) it's controlled, most jobs are are available I've done work in Amazon, IT, and most recently I'm now in the Prison service I didnt think i could but hey I'm here!
This is the side epilepsy really got me down as I wasnt diagnosed from birth and was later developed so the realisation really hit hard. My original plan was the military as a Pilot/ air crew. Back up was airline pilot or ATC I wanted to do many things such as skydiving and I still do.
But at some stage you have to just stop fighting and accept it I won't lie I initially attempted to lie to the armed forces but in reality I was selfish and I'm glad I called up and coughed up.
Jacktheforkie@reddit
Certainly nothing involving driving or operating heavy machinery, are you able to safely use a computer? Lots of admin type jobs around
lkap28@reddit
I don’t have epilepsy but something similar - I’m a copywriter and work from home. Anything similar would be good for you (though maybe not wfh if you have seizures often).
Essentially you need to rule out working from heights, with machinery/knives/heat etc, and maybe caring for vulnerable people - but there’s nothing stopping you doing admin or sitting in meetings.
Seconding what others have said, you don’t have to disclose during the interview/onboarding stages - and honestly I wouldn’t. It sucks but people do hear disabilities and panic. Get the job and let them figure it out later, you’re protected at that point :)
When you can, reapply for PIP but do some research into the criteria for support. There are some useful resources out there.
PresentRelevant3006@reddit
My adult daughter is SEND but also has refractive epilepsy (meds do not stop the seizures) she did get PIP so her situation is different and also has LCWRA.
That said she volunteers at an animal sanctuary. They did a full health a safety review and have qualified first aiders at the rescue. She loves it and in time, is looking at working part time with animals.
When it comes to epilepsy and working you need to know what your triggers are. For my daughter, stress, flashing lights, autistic meltdowns, anxiety all trigger her.
Think about how many seizures you have per day/week. Are their triggers?
Search for disability confident employers, most job searches now allow you to search for them.
Think about apprenticeships.
If you were denied PIP, did you look at mandatory reconsideration? Have you looked at applying for a WCA with UC? Did you get the assessors report from PIP explaining why you did not get enough points?
Tattycakes@reddit
I wonder if any of the animals notice a seizure coming on before she does!
PresentRelevant3006@reddit
Thankfully she has not had a seizure while volunteering there (yet) as the staff know her triggers and make sure she isn't exposed to them. We also know when she is tired (as that is another trigger) that she doesn't go in.
That said, our rescue dog who has zero training in seizure detection knows 5 seconds before she drops. Animals are truly amazing.
crankyandhangry@reddit
A lot of people are recommending desk jobs, creative jobs, admin etc. These are all safer for you to do, but if I were you, I'd also consider how the epilepsy (and/or medication) affects you mentally. I've heard some people say the meds and the seizures themselves make them tired, unable to focus, forgetful, brain fogged etc. If these apply to you, and you feel you wouldn't be able to do a desk job because of that, do go back to your doctor and discuss your options. The people who decide your PIP do not have an interest in making it easy for you to get it. It's on you to prove you can't do (certain) jobs, and they will fight you.
ClarifyingMe@reddit
When you were let go due to epilepsy, did they first make you have an occupational health and risk assessment? You've not really given clear information about how your epilepsy affects you.
Scottish_squirrel@reddit
My friend has severe epilepsy and she got a job stacking shelves in Asda on a late/ night shirt. They were super accommodating to her sensory needs. Might be worth talking to an epilepsy charity about what employers are sympathetic to the condition.
Deathwish8041@reddit
Any kind of office work. Even better if it’s working from home or hybrid. Hope you find something soon!
MrPatch@reddit
Cocktail shaker?
pajakpajakpajak@reddit
Someone else made this same tired joke hours ago. Wasn't funny then either.
Croakcamel@reddit
My BIL has epilepsy and he was a millwright - you can do whatever you like. I don’t think you need to tell them that you’re living with epilepsy.
goodmythicalmickey@reddit
I have epilepsy too but I don't bring it up until I'm already hired and signed contracts, I don't even like applying using the "disability confident scheme" because it could be easily biased
Poo_Poo_La_Foo@reddit
There are numerous people in my company who have epilepsy, but I suppose it can effect everyone differently. The ones I work closely with take daily medication, but work in pretty high end tech roles.
If you are in such a place that you cannot function or look after yourself then clearly, work would be low down the list. But if it is a condition that is managed there are lots of roles you can do from home.
Remember, PIP is not awarded based on diagnosis, rather how it impacts your life. If you need to apply again, focus on the impact on life not the title of illness. The citizens advice site is excellent for guidance.
SusieC0161@reddit
Obviously I’d not go for anything that involves driving, unless you’ve been fit free for years. It’s probably also best to keep away from any jobs that involve lone working, such as nights on a hotel reception desk, or anything involving handling machinery. You have to think of the risk to yourself and others if you fit while in work.
I’d look at the bigger employers to be honest, big companies that have occupational health departments. Councils, NHS, civil service, main supermarket chains. Don’t mention your epilepsy until you complete a health declaration for occupational health - then be very honest. They are unlikely to say you can’t have the job, what they will advise is risk assessments. If you work in a call centre or an office job there are fewer risks than if you’re working with machinery, hot plates or up a ladder!
The epilepsy society has some useful info about epilepsy and work. https://epilepsysociety.org.uk/living-epilepsy/employment
Antique_Location_514@reddit
one of my friends with epilepsy has their own business and makes crochet plushies/items!!! she sells things online but also sells things at different market stalls as well as claiming the social help she can get
anabsentfriend@reddit
My cousin has epilepsy. She has a major seizure that will require a hospital visit a couple of times a year. Other than that she's generally ok. She obviously can't drive and has to take medication to sleep along with her epilepsy medication. She's a solicitor.
thomothypooper@reddit
I’ve got epilepsy and I’m a journalist now. I used to work as a copywriter and then did office admin before that. Also got a background in bar work.
You can pretty much do anything! Honestly, I just wouldn’t mention that you have epilepsy if you don’t get seizures on a regular basis and it’s affecting your confidence.
It really just depends how bad it is and whether your condition is relevant. For example, I mentioned it when applying for my current job as driving was a requirement. I explained I can’t drive at the moment due to my condition. They sorted me out with a WFH position.
Many employers will work with you if they think you’re capable. I wouldn’t write yourself off. Just think about what your skills are and perfect your CV like everyone else.
DECKTHEBALLZ@reddit
PIP has nothing to do with working..
waxfutures@reddit
Admin in the NHS, one of my colleagues has epilepsy and he does absolutely fine.
milrose404@reddit
PIP has nothing to do with employment and you can theoretically receive it whilst working full time. Have you applied for universal credit? They should be able to both help financially and offer support and guidance on finding suitable work, including with disability confident employers.
Atomlad360@reddit
Most office/admin jobs should be fine. I've worked with a couple of epileptics over the years, and there's sometimes a team email and a pillow kept near their desk if they need it, and a few people briefed to help out if needed.
AutomaticInitiative@reddit
I am an office worker in the energy industry and I work with two epileptic people. As a first aider I have their plans although in 5 years neither has needed it. My teammates who are in customer support roles (I'm more specialised) came from many places - a pharmacist, someone who worked in a taxi rank, a nurse, someone who worked in a shop, a radio DJ - what matters is ability to learn and openness to question and admittance of mistakes.
Vladamir_pootinn@reddit
Plane driver
Klutzy_Security_9206@reddit
Surely you can’t be serious?
🧐
CrabbyGremlin@reddit
Deadly
Klutzy_Security_9206@reddit
Bugger. I was actually setting you up for an ‘Airplane’ quote
Atomlad360@reddit
I saw where you were going, but the moment's gone now 😞
neilm1000@reddit
Have you ever wanted to work for a newspaper?
pointsofellie@reddit
No sir
eggs_and_ham_i_am@reddit
Cocktail shaker?
Loose_Avocado4670@reddit
There's always one.
Winkered@reddit
You’re going to hell my friend.
/s
littlebutters1@reddit
I work in retail and have worked with 2 people with epilepsy one at my last job and one at my current job, neither told the employer, my son has epilepsy so I understand what its like he's 15, hope you okay xx
farraigemeansthesea@reddit
I used to know a naval engineer with epilepsy. His condition was well controlled with medication, but he was a bloody miserable, abusive sod to his family.
pixelunicorns@reddit
My mum has epilepsy and had someone to support her through the PIP process because her case is so severe she's unemployable nowadays. I believe the person was a professional advocate but can't remember if they were from Citizen Advice or her local council. It's worth contacting both, and any charities that offer advice/support.
The advocate collected evidence that none of the local employers would hire her due to her epilepsy and disabilities. In her field that she has experience in (schools) and other sectors.
But it does depend on how severe your epilepsy is, I have a childhood friend whose kept his under control so he can drive, he goes snowboarding, and maintains a career (I want to say in advertising). So having epilepsy isn't an automatic reason not to work. I'm fairly certain you do not have to reveal anything at the early stages of a job application, especially if the job doesn't involve things like operating machinery, or taking care of children/vulnerable people, or lone working. Good luck, I hope you find the guidance you need.
terryjuicelawson@reddit
I have epilepsy, I thought the only thing I'd be barred from was certain types of industrial work, or driving jobs (even though I can now drive). Surprised you even could get let go from a kitchen for this - they should put something in place for you? Depends on how it affects you and the finer details I guess.
KerryKinkajou@reddit
I've got epilepsy and I've had loads of jobs. They made reasonable adjustments since they legally have to under the Equality Act - for me this just meant no lone working. It really depends how frequent your seizures are and how debilitating, I was having 2-3 tonic clonics a month at my peak with some focal seizures in-between, but I've always had an aura beforehand to stop what I'm doing.
Jobs where a seizure would impact your safety or those around you are obviously a no go, but people can't discriminate against you for it in terms of recruitment. Try find Disability Confident Employers, they're part of a scheme where you're guaranteed an interview if you meet the essential criteria.
I'm not going to say having seizures didn't impact me in terms of work, but I'm still able to have a full time job and progress in my career. Took me about 12 years to get a formal diagnosis and I've now been seizure-free for just over a year.
HideousTits@reddit
You don’t have to tell your employer.
FunkyYoghurt@reddit
This is so right but wrong. You don't, no. But you need to tell them if your epilepsy is a potential risk to yourself such as a driver or working with machinery.
FunkyYoghurt@reddit
I'm a support worker and have colleagues with epilepsy. They're just not placed in properties where you're lone working 1-1 with a service user.
SolentSailor@reddit
I had a client once who told me they had epilepsy. Office based job, their employer also made accommodations so they weren’t on any of the on call rotas (I can’t remember if the seizures were more likely if they worked overtime or it was more prevalent at night). The conversation came up because of the on call rotas and all their colleagues knew about their exception and why.
Hcmp1980@reddit
Office job, low pressure regular hours.
DustierAndRustier@reddit
I have an epileptic friend who stocks shelves. She can’t manage anything more challenging because of her cognitive issues. I guess it really depends on your specific epilepsy and how it affects you.
Necessary_Umpire_139@reddit
Dependa on how it affects you, I've worked in fast food, engineering and call handling all while having epilepsy. The only thing it stops me doing, which I wanted to do, is the military
L-0-T-H-0-S@reddit
Legally, you do not have to disclose your epilepsy in an application or interview, unless you need reasonable adjustments for the interview itself. Many people find success by disclosing after they have been offered the job, once they have proven their capabilities.
Unless you're applying for your pilots licence, you're not required to be upfront.
elhazelenby@reddit
I was also not given a permanent contract in my temp job in food work (spar deli) partially because I started having (likely non epileptic) seizures during the time I worked there. I had a few on the way to work a few times and had to go to a&e to get checked out for them and dizziness/falls so I couldn't go to work some days. Sucks because I can't drive (for obvious reasons) or a bunch of other stuff. I haven't had a job since then (last summer).
Since October last year I've been volunteering my graphic design and marketing skills from uni doing social media for a charity at home so I can get an office or remote job in my degree fields because I'm also cursed with being a young graduate with little experience.
YouSayWotNow@reddit
I would say that jobs that could be dangerous / cause damage by having a seizure (such as a cook dropping hot pans or full dishes or not being able to turn the heat off whilst cooking) may be best avoided.
Likewise jobs where suddenly having a seizure may be dangerous for others (such as the staff who take 999 calls and need to either direct emergency services to help or directly help the caller through their emergency) may not be the wisest choice.
But a lot and lots and lots of jobs, particularly office based ones, should be fine. I certainly have friends who are epilectic and hold down office jobs (of a very wide variety) without any issue.
Wishing you best in working out the right role for you and finding a suitable job.
escapingfromelba@reddit
Epilepsy is a broad term, ranging from regular falling down fits to minor absences or once in a blue moon fits so that's something you've not explained.
In my family, it's been a case of taking any job you can that isn't outright dangerous i.e get the job and then tell them.
Shurlperburper@reddit
Lots of advice here but without knowing more about your epilepsy it's hard to say. I'm a support worker for a gent with uncontrolled epilepsy. You'd never pick him out in a group of people but he can have a seizure at anytime and he gets pip and support workers funded. I know this probably isn't the case for yourself but you have to understand your epilepsy before you can decide what's the right role for you in the workplace.
deadeyes1990@reddit
You’re not unemployable, you just can’t safely do certain jobs, and that’s a massive difference.
Plenty of people with health conditions work, they just need the right kind of role. A kitchen probably isn’t it, but that doesn’t mean there’s nothing else out there. Office work, admin, customer service, remote jobs, reception, stuff like that could all be options.
To be honest, it sounds like you’ve been badly supported and made to feel hopeless, which is awful. But none of this makes you useless or a write-off. You still deserve the chance to work and have a normal life.
ldn-ldn@reddit
Software dvelopment.
FallZealousideal3337@reddit
You can work in many roles with epilepsy like admin, remote jobs, retail, tech, or creative work focus on positions with safe environments and supportive employers, and don’t be afraid to ask for reasonable adjustments while building skills that make you stand out.
Extreme-Banana-9@reddit
Find a comfortable office job I'd say
smeghead9916@reddit
I'd steer clear of anything with knives or fire, they're worried about serious injuries and liability.
Maybe something in customer service? A customer might be alarmed if you have a seizure, but I see no risk of you or people around you getting hurt.
ZombieRhino@reddit
The vast majority of offices jobs.
midnightbandit-@reddit
Not a driver
Future-Selection9287@reddit
My brother in law has seizures and he's a fully trained plumber
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