Get yourself checked, fellows.
Posted by Piscivore_67@reddit | GenX | View on Reddit | 363 comments
I have stage four prostate cancer. I just got told today my current treatment plan isn't working. I'm applying for a clinical trial, but if I'm not accepted, I have a year or less left.
More chemo could add a month or two to that number, at the cost of making my remaining days a nightmare of nausea, fatigue, and other horrible side effects to the point of making life not worth living.
I didn't get checked and ignored or explained away symptoms until it was too late.
It might not be pleasant, but don't avoid getting checked.
Good luck, guys.
Fishfry12@reddit
So sorry for your diagnosis, I pray that you get into clinical trial and hope your remaining days are peaceful. I lost my father to prostate cancer. He was 80 so he had a good long life but still, cancer is brutal. I get my PSA checked at least twice a year now. Good luck my friend and God bless.
Piscivore_67@reddit (OP)
Thanks.
GeekTX@reddit
I want to chime in here ...
OP ( u/Piscivore_67 ) me deepest sympathies and encouragement to fight the good fight my friend. I too made the mistakes of passing up the checks I should have because "I'm a man and I feel fine!" and that is total bullshit. I pray that you are accepted into the trial and that it does everything you need it to. Chemo sucks ... worse than the cancer at times. As a patient myself I understand your decision and support you 100%. Family and friends that are only seeing this from the outside will never understand but you should not concern yourself with that.
Everyone else. on 10/20/2025 I walked into an urgent care clinic because I never go see my primary so I have to have a new patient visit which means I don't get to just go when I need to. I walked in hoping for a Z-Pack, a pain killer and a few days of quiet time .. walking pneumonia or the flu or even long covid ... nope ... not me. I was sent to the ER because my blood pressure was trying to kill me. I peaked out at 238/184 right before they took me to the cardiac unit.
Surprisingly ... all is well with the ticker and it only wanted to call attention to our new internal neighbor, Fred. We aren't sure when Fred decided to move in and take up residency on my pancreas but they found his ass. 2CM mass on the head of my pancreas ... caught at stage 1 ... un-fucking-heard of with pancreatic cancer. Normally it is found at stage 4 term w/ mets and weeks to months to live. I am lucky and I know it and pray constantly that luck keeps going my way. I will add you to my prayer list.
Kal_El_77@reddit
Just got mine done yesterday as I recently had a positive Cologuard test. The procedure is really nothing, prep is the worst part. Also, sorry to hear about your situation. Hope you get into those clinical trials.
NotEasilyConfused@reddit
Cologuard doesn't test for prostate issues. Are you in the wrong thread or is there a lot more to this story?
PreviousAd8450@reddit
Although rare, colon cancer can spread to the prostate. May has well check, if the first test is already positive.
ImaSource@reddit
Like the other dude said, wrong test. That's for the colon. A PSA blood test is what you're looking for. Ask your Dr if you can get it, if you're worried. I'm 52, and my Dr was able to get mine. Came back all good.
Hadrian98@reddit
Doing my PSA test next week in conjunction with an annual physical: 4 months before recommended or covered by insurance. Turns out the test is about $50, told them I’d pay out of pocket instead of waiting another year.
RustedRelics@reddit
I’m surprised by how many people are saying their docs don’t automatically include PSA in their annual bloodwork. OP, hoping the trial works for you.
Selitos_OneEye@reddit
I just turned 50 and I asked my doctor about a PSA check with my blood work. He said they don't usually check PSA until 55 but he said he would add it to my blood work. It didn't bother him to add it. Now I just have to get over to the lab
Affectionate-Owl3365@reddit
The bigger issue is the 1/3 of the male population that do not have annual physicals and only go when they have a pressing concern. My father was in that population and paid the price - stage 4 cancer at 55, and passed within 9 months of diagnosis.
Piscivore_67@reddit (OP)
Yep, that was me.
Piscivore_67@reddit (OP)
Thanks
Kodiak01@reddit
75er. 12 core biopsy about 2 years ago after a PSA in the high 20s.
Thankfully just BPH. I take my peepee pill (Tamsulosin) every day, last PSA was in the 2s and Free PSA was up to 17 from 7. Get it checked every year now as part of my physical.
concerts85701@reddit
I read this in Peanuts parent voice
Kodiak01@reddit
Just wait until the day comes in life where you need a prostate biopsy. They tell you that you may see traces of blood in your urine and semen for a few days after.
Blood traces in urine? Try pissing pure blood and even blooping out massive blood clots that turn your bathroom into a scene from Friday the 13th. Myself, I was pissing into a urinal at work and it was splattering all over the porcelain; just as I stepped back when I finished, a coworker came in and saw the carnage. They really should include "Pee sitting down until clear!" in the instructions.
But if you think THAT'S fun, just wait until you go to rub one out a few times only to have a fountain of dark, almost chocolate-colored deoxygenated blood-soaked jizz shooting out like Mt St. Cadbury.
All completely normal. It took about 8-10 sessions to clear the pipe. The part that really threw me off is that when I made clear to my wife that I wanted to clear the pipes as quickly as possible, she responded saying that there was no need to wait that long if I really wanted! Of course, she also spent several years as an MA in a rehab urology practice so I guess it's not such a big deal to her...
concerts85701@reddit
Wasn’t attacking you.
Piscivore_67@reddit (OP)
Hope things continue to go well. Sounds like you're on top of it.
stevemm70@reddit
High 20s??? Holy crap.
GumRunner0@reddit
I am so so sorry my friend, My father passed away at 67 because of this, I have had my checks and I have had my prostate removed at 51 , no more erections and my sex life is nonexistent, but its better than watching my father die because of it ...Im wish you the best my friend
Seawolfe665@reddit
Im so sorry - that sucks. I do hope you get on the trial.
As a breast cancer survivor (due to a clinical trial) PEOPLE GET YOUR BITS CHECKED!!
formercotsachick@reddit
Colon cancer survivor here, found at my first routine colonoscopy with no symptoms. Do not skip preventative checks of any kind - any discomfort is better than mid or late stage cancer.
Every-Cook5084@reddit
Colonoscopy isn’t even discomfort I don’t know why so many put it off. Yeah the prep is inconvenient but no big deal really.
WhiskeyDeltaBravo1@reddit
Having something rammed up your ass by a stranger isn’t discomfort???
MyCatsHaveTheZoomies@reddit
Well, you are under anesthesia and totally asleep— and then get to take the day off work. Plus, although the prep isn’t fun, I feel like my gut feels a little rebooted after the cleanse of prep. Get your checks, people!!!
WhiskeyDeltaBravo1@reddit
I’m sure it’s sore afterwards. I’ll opt out.
formercotsachick@reddit
Dude, I promise you that getting a colonoscopy doesn't make you gay.
I've had 3 colonoscopies in 5 years and have never felt sore or uncomfortable after, not even when they've had to remove polyps that you know, will eventually become cancer if they're not removed. What really sucked was having 1/3 of my colon removed when they found stage 1 cancer at my first routine colonoscopy at age 50. I had no family history and zero symptoms.
If you think having something put up your ass is painful, you've obviously never watched someone die slowly from end stage cancer. I have, and it's not something I would ever risk happening to me. Your milage may vary. If you want to play chicken with cancer, be my guest, but I gotta tell you cancer always has the upper hand no matter how hard core you think you are.
WhiskeyDeltaBravo1@reddit
Ain’t worried about it “making me gay”, I’m worried about it HURTING. JESUS.
Kitty-Keek@reddit
Female here, and I had a colonoscopy a couple years ago and it was so easy. My husband was resistant because he doesn’t want something put up his rectum, but I told him, you’re asleep during it and you can’t even feel discomfort afterwards. I did the prep, went in, went to sleep, woke up, and my husband brought me home. No discomfort at all, no pain, so easy. Just get it done!
WhiskeyDeltaBravo1@reddit
Y’all are really trying to convince me of this, ain’t ya? What’s in it for y’all? 🤣
Koumadin@reddit
colon cancer is not just treatable but CURABLE when caught early
it does not necessarily cause ANY symptoms in the beginning tho, so if u don’t look for it u can miss a curable disease.
When advanced the symptoms suck. Bowel obstruction, pain etc
Myfanwy66@reddit
Maybe value your life more than you do?
Myfanwy66@reddit
It doesn’t hurt! At all. During or after! And you get the best nap of your life as a bonus!!!
WhiskeyDeltaBravo1@reddit
HOW DOES IT NOT HURT? That area is exit only! 🤣
formercotsachick@reddit
I can't believe I'm responding again, but work is slow today and your ignorance has graduated from infuriating to simply astounding. The world is such a rich tapestry of all types of humans, it really is. Joyfully risking cancer because you don't want someone touching your ass is something else indeed.
How big do you think the camera is???? It's about 13mm, roughly the came circumference as a pen or pencil. If you're getting a digital rectal prostate exam at your annual physicals (which I would bet you aren't, since it's "only an exit" 🙄), your doctor's finger is about twice that size. And if you're not getting prostate exams, you've obviously missed the entire message that OP was trying to pass on.
And no, that doesn't hurt either - I know because at my annual gynecologic exam, my doctor does a rectal exam, since they can palpitate the uterus through the rectal wall to look for anything unusual.
Having something approximately 1/2 inch in diameter going into your asshole does not hurt or leave lasting pain. I'm sure you've taken dumps much larger than that, and stretching the anus is stretching the anus, whether the item in question is going in or out.
WhiskeyDeltaBravo1@reddit
Why are you so angry about this?
formercotsachick@reddit
Because blind ignorance in the face of facts and science is particularly enrageing to me. And the idea that someone might listen to someone a dumb as you about something important that could save their life.
And now I really am done with you. Time for the old block button. 👋
Alansmithee69@reddit
I just had one 24 hours ago. Zero pain. Two small polyps removed. You will be in serious pain if you don’t check and something isn’t caught early. I also survived melanoma from early detection. Go get checked.
tyranopussy@reddit
If done correctly, you won’t even know anything was done. Why risk shortening your life for fear of an ‘If’? Men are so homophobic or have an issue with that part of their body. It’s not worth dying early over it….
Kitty-Keek@reddit
It would only hurt if you were awake during the procedure, and even then I don’t know if it hurts because I was given general anesthesia. It was awesome.
WhiskeyDeltaBravo1@reddit
Seems like it would hurt afterwards though. I think yall are in some kind of conspiracy here. 🤣
Kitty-Keek@reddit
Also, even if it did hurt, cancer hurts worse. Just schedule it!
Kitty-Keek@reddit
My personal experience was there was no pain afterwards. No discomfort even. And I know TMI, but I have hemorrhoids and also they removed a polyp. I had no discomfort or pain and I was surprised but pleased.
Myfanwy66@reddit
It truly does not hurt. Not even when you poop for the first time afterwards! Please take care of your health. Colon cancer, caught early, is treatable and curable!!!
fwambo42@reddit
It’s not
alanamil@reddit
Wasnt sore at all.
Myfanwy66@reddit
Not at all.
apollemis1014@reddit
I had absolutely zero pain after mine. Neither did my husband. I don't know of anyone who did.
Koumadin@reddit
zero pain. you’re sleepy with propofol
zoomgirl44@reddit
You’re completely asleep and feel nothing. The only thing that sucks is the prep and even that isn’t as bad as people make it out to be.
MassConsumer1984@reddit
It’s a twilight sleep, and yes, I did wake up during it and it was extremely unpleasant. I’ve got lasting ptsd from that experience. Found nothing at all and I do Cologuard on the regular now.
MyCatsHaveTheZoomies@reddit
IMine have always been totally out and not twilight sleep. Get a new gastro person!
zoomgirl44@reddit
Mine was definitely a “put to sleep” Sorry you have PTSD 😕
Piscivore_67@reddit (OP)
Thanks
Typical_me_1111@reddit
What were the symptoms that you ignored?
Piscivore_67@reddit (OP)
Pain while sitting, weakness in my legs, urinary difficulties.
The first two I put down to obesity, the last one my history of kidney stones.
Fritzo2162@reddit
How long did you have symptoms?
Piscivore_67@reddit (OP)
A long time. I was one of those that stoically endured shit rather than actually address it. Pretty stupid.
Fritzo2162@reddit
My dad did this too and he did himself in. As a PSA: you can't tough-guy yourself though a systemic failure or an illness. If something is wrong for more than a few weeks, it NEEDS to be evaluated. No ifs, ands, or buts.
Piscivore_67@reddit (OP)
For sure
Typical_me_1111@reddit
Thanks for sharing. I wish you all the best.
Piscivore_67@reddit (OP)
Thanks.
disastrous_affect163@reddit
Sorry to have you onboard, I wish I could tell you it's a good ride, but cancer sucks. 🤷♂️
I was diagnosed in 2017 with lung cancer, nothing to do with smoking ironically. Found it had spread in 2018 and been slowly losing ever since. They won't even guess a time frame as the cancer I have is rare and they don't know.
I think our generation was subjected to the worst of the industrial modern age and corporate greed of the 1970's. It's a wonder all of GenX doesn't have some kind of chronic health issue. Either that or we all avoid doctors the same.🤷♂️
suoretaw@reddit
But cancer doesn’t get to ‘win’. By all means, use whatever language you’re comfortable with; I just dislike that analogy because you didn’t pick this ‘fight’, nor is it a remotely fair one. (Fuck cancer.) I wish you all the best, and hope that the docs’ unknown ends up being better than the known.
disastrous_affect163@reddit
I've been in treatment for stage 4 cancer for going on 8 years, and I'm still living independently. 👍 That's a lot more than most get, I have no plans on stopping. 🫡
Piscivore_67@reddit (OP)
Good luck, my friend.
disastrous_affect163@reddit
Thanks
Mottinthesouth@reddit
So sorry to hear this. Lung cancer can be more common in non smokers than most people realize. Not enough places are teaching about radon exposure at home for one thing. It’s quite alarming actually. We recently tested our home and discovered super high amounts. Installed a mitigation system and it cleared it up to safe levels. Now we’re trying to figure out how much of our health problems were attributed to our immune systems fighting exposure every dang day/night.
disastrous_affect163@reddit
Thanks👍 Mine is even rarer than that. And the lung is not the typical starting place, the intestines are.🤷♂️
I swear our generation was just one big experiment dreamed up on an acid trip in the 60's.🤷♂️
Melekai_17@reddit
I am so sorry. I hope you get into the trial and the treatment is successful. I don’t know anything about treatment for prostate cancer, but I wonder if immunotherapy has been successful for treating it?
Wishing you the very best possible experience with quality of life for as long as possible.
Piscivore_67@reddit (OP)
That's what the trial entails.
Thank you.
Melekai_17@reddit
Oh good. I really hope it gives you many more comfortable years.
Piscivore_67@reddit (OP)
Fingers crossed.
Melekai_17@reddit
🤞🏻🤞🏻🤞🏻
JackieDaytona7@reddit
Get your PSA blood test, guys.
Wishing you the best, OP. We went through this with my dad. Hang in there.
LesPolsfuss@reddit
is that done during most physicals? I know when I get mine blood work is usually done.
that test tells you?
BucketOBits@reddit
A good primary care physician will recommend annual PSA tests starting at the right age.
That said, I actually had to ask for mine when I hit 50. My doc didn’t bring it up.
CGS_Web_Designs@reddit
My doc has had mine as part of my annual physical since I turned 40.
LesPolsfuss@reddit
thanks!
Piscivore_67@reddit (OP)
Thanks
Creative_Tourist66@reddit
My dad has had these regularly because my mum keeps on at him but he ended up in the hospital with his prostate we nearly lost him but not to cancer fortunately the consultant told us that the psa doesn’t pick up everything and you must always have the physical exam to make sure you cover all bases. Now getting to time for me to start nagging my husband too!
SabrinaFaire@reddit
Hoping for the best for you. ❤️
I will agree though. I was dx with breast cancer almost two years ago because of a regular mammogram. No family history, no symptoms. It was caught very early. I was lucky.
Piscivore_67@reddit (OP)
That's great.
SabrinaFaire@reddit
Yes, and I don't mean to take away from you, just want to encourage people to get their screenings.
Piscivore_67@reddit (OP)
Me too, absolutely.
kentuckywildcats1986@reddit
At a minimum, its just a good idea to see your GP annually, have blood drawn, and get your full battery of panels done, which includes the PSA (Prostate-Specific Antigen) test.
At 57 mine continues to show up as OK.
Also getting a colonoscopy every 5 years since my brother got colon cancer requiring treatment (now in full remission thank goodness).
My wife's dad died from prostate cancer. Wasn't detected until stage 4. He was of that silent generation where men just didn't go to the doctor, ever. It was sad to lose him.
In his case, it was so far gone, and at his age, surgery proved to be a bad choice. He went into the hospital, it didn't go well, and he spent the last couple weeks of his life miserable in a hospital bed loaded up with tubes. If it were me, I would have instead chosen palliative care and enjoyed what time I had left at home.
Piscivore_67@reddit (OP)
I asked about surgery, and they said pretty much the same. It might slightly help with the pain, but the recovery and everything would preclude any other treatment options.
Glad your brother's okay, and sorry about your dad.
kentuckywildcats1986@reddit
Like Bugs Bunny said - "Life. Nobody gets out of it alive."
My dad died when he was 54 of heart disease - likely from a lifetime of untreated hypertension - which I also have. I'm 57. I've embraced the likelihood that I could go any day - and honestly I'm at peace with it. Life has been exhausting and I'm relieved that it doesn't go on forever. For some reason in 1968, some of the matter and energy of the Universe decided to try out being me. And when my life process ends, I will go back to being part of this wonderful, infinite universe - where beloved family, friends, and pets have gone before me.
We've not been as lucky as some, but we've probably been luckier than most - to have the run we've had. I wish you the best and hope for your treatment to give you the most comfort and relief in the time you have. Enjoy everything you can in the meantime.
Piscivore_67@reddit (OP)
Thanks. I have a similar attitude.
kentuckywildcats1986@reddit
If you haven't already, let me recommend seeing 'Project Hail Mary'. I read the book and the movie is awesome.
Piscivore_67@reddit (OP)
I have read the book, and I have to wait till the movie gets to streaming.
BigBanyak22@reddit
That sucks, sorry to hear this. Thank you for sharing the advisory. I just got my test in the mail yesterday.
One_Ratio_3899@reddit
I’m so sorry, my friend.
Would you mind sharing the “explained away symptoms”, so others can be more mindful?
Piscivore_67@reddit (OP)
I've touched on it in another comment, but basically I excused away pain and weakness in my legs as a consequence of being obese and not excercising. Instead of going to the doctor.
Commercial-Novel-786@reddit
I'm really sorry that this is happening to you, OP.
I have an appointment with my primary one week from today and because of your post I'm going to request whatever kind of inspection is needed to clear me. You've made a difference here.
SkweegeeS@reddit
Ask for the PSA test.
Commercial-Novel-786@reddit
I will, and I really hope this isn't a setup. 🤣😂
Piscivore_67@reddit (OP)
Awesome, good luck.
LesPolsfuss@reddit
thanks, truly thanks. really helped get me motivated.
i hope you beat this.
Piscivore_67@reddit (OP)
I'm glad to hear that.
Unfortunately, yhere's no beating it for me at this point.
DocMcCracken@reddit
Enjoy every sandwich, wishing you all the luck.
Piscivore_67@reddit (OP)
Thanks
Kodiak01@reddit
There there's the Old Dogs advice on life.
Piscivore_67@reddit (OP)
Lol, that was great, thank you.
Kodiak01@reddit
This one would be how life actually ended up for many of us.
Piscivore_67@reddit (OP)
Yep.
64vintage@reddit
What symptoms did you ignore? Just in case I’m ignoring the same ones /
And thank you for your courage.
Piscivore_67@reddit (OP)
Pain while sitting, weakness in my legs, urinary difficulties.
The first two I put down to obesity, the last one my history of kidney stones.
kanben@reddit
What kind of pain and where? How weak were your legs? Struggling to stand? What did you find yourself doing as a result of the leg weakness?
Piscivore_67@reddit (OP)
You know that pain when your legs go to sleep, and then the feeling comes back? That's how it started. I assumed it was because I weighed over 400lbs at the time and it was a circulation issue. Kept trying new chairs.
The leg weakness was the same. I've always lived a grotesquely sedentary life, and it got worse when I went on disability. I figured it was just lack of exercise. I would start different exercise schemes, but the srthritis in my knees made it hard, so I'd slack off then quit. Then I fell a couple of times. The last fall I couldn't feel my legs at all.
64vintage@reddit
What symptoms did you ignore? Just in case I’m ignoring the same ones /
And respect for your courage.
TheHip41@reddit
What were some of the symptoms.
Piscivore_67@reddit (OP)
Pain while sitting, weakness in my legs, urinary difficulties.
The first two I put down to obesity, the last one my history of kidney stones.
PotterSarahRN@reddit
I’m sorry. My dad has been dealing with prostate cancer for years and has been in stage four for four years now.
I’m glad you have a good support system. Please seek out palliative care asap. It’s not hospice, you can still get treatment, but they will help with pain, nausea, and other symptom management. They can also get you in touch with a counselor that can help with the mental side of things.
I wish you nothing but the best for the rest of your life and good thoughts to your loved ones.
Piscivore_67@reddit (OP)
I've got a great cancer center. I'm checking in with my pain management team tomorrow, lol. My oncologist is hooking me up with their psychologist. I hope they can help my wife, especially.
Thanks for your kind words.
taking_a_deuce@reddit
As the husband of a wife dying of cancer, I'm sorry to say, it's going to be a very hard road for your wife. Anticipatory grief is truly soul crushing. Caretaking is exhausting. And in general, everyone will be focused on you and her pain and needs can be forgotten or ignored up until the day you die. Our couples therapist asked us during a session recently how well our needs are being met and I just thought to myself "needs?I don't get to have needs, I haven't thought about needs in months."
I'm very lucky to have a wife that understands the toll this is taking on me. It's an incredibly selfless attitude and takes a lot of grace to walk the road she is walking, wrestling with her own mortality, and acknowledging my pain is very real too. I wish you both the best as you navigate it. It's a terrible road no one should have to walk. I'm so sorry you're both on it right now.
Piscivore_67@reddit (OP)
I'm sorry about your wife, and that you are both on it too. I wish you both the best.
I'm looking into counselling for her, if she wants it.
Finding_Way_@reddit
Palliative is another level of support and I too encourage you to ask for it. It is not in place of others. It is an addition to. These docs specialize in coordinating services and helping you live as well as you can as long as you can on YOUR terms.
You are so kind and strong to come here to share to look out for others and for looking out for your wife.
We're pulling for you.
Piscivore_67@reddit (OP)
Thanks
Pinknailzz69@reddit
You sound very brave. I hope your final days of your journey are manageable and pain free. Thank you for your post. We are all coming to the end of our journeys but yes we don’t want it to be premature.
Tech-Mechanic@reddit
This really sucks, man... And definitely gives me something to think about. I'm 58 and I never go to the doctor, even though I have decent health insurance. After all, I feel fine.
I hope you are able to get into that trial, and it can help your situation. Good luck, bro.
Piscivore_67@reddit (OP)
Thanks, man. Go get checked out, please.
Formal_Plum_2285@reddit
I’m so sorry 😢💙 My mind can’t even begin to comprehend how it must feel having to go through stuff like affordable treatment plans in a time like this. I’m from a country with completely free healthcare. Once when studying abroad I needed urgent care and the hospital staff asked me, how I wanted to pay. I thought they were joking. I wish you all the best.
Piscivore_67@reddit (OP)
I'm lucky, I have pretty good insurance, but it's still taken a bite out of my wallet.
Ancient_Star_111@reddit
I’m so sorry :(
I’m an oncology nurse and I see this often, patients ignoring symptoms until it’s too late :(
Piscivore_67@reddit (OP)
I bet. Keep up the good work, nurses are my heroes.
Pigeonofthesea8@reddit
How were you diagnosed?
Piscivore_67@reddit (OP)
My legs quit working. The hospital found a tumor on one of my vertebrae.
Pigeonofthesea8@reddit
Oh man.
So sorry.
Piscivore_67@reddit (OP)
Thanks
cuchulain66@reddit
Don’t die stupid. At least get a PSA test.
raisinghellions@reddit
I’m really sorry to hear this. Agree if you’re not accepted to the trial, no sense in doing more crushing chemo that will reduce or destroy your quality of life and not give you that much more time. Sometimes they can offer you palliative chemo at a much lower dose that will still give you a little more time and preserve your quality of life. Not sure if that is an option for you but worth discussing if you haven’t already (I’m sure you have tho).
Go and enjoy the time you have. ❤️
Piscivore_67@reddit (OP)
That's the plan!
vandervee@reddit
I’m so sorry you have to go through this, and from reading the comments, I gather the metastasis is in your bones and spine. I imagine the pain is terrible from that. I hope you are able to find a treatment that lengthens your days along with palliation that lessens your pain and improves your quality of life. Kudos to you for sharing your story.
Piscivore_67@reddit (OP)
It's not fun. Thanks gor your good wishes.
waitwutok@reddit
Reach out to the MD Anderson Clinic in Houston. I know of a guy diagnosed with stage 4 lung cancer who got on one of their experimental protocols. He was cured.
Piscivore_67@reddit (OP)
I'm seeing MD Anderson in Phoenix. They are great. I'm convinced they've given me a few more years than I would have had with my first oncologist.
xxlordsothxx@reddit
This right here. OP, seriously try to get an appointment at MD Anderson in Houston. They may have a different opinion. They are at the cutting edge of cancer treatments. People from all over the world come to MD Anderson to get treated.
IronBallsMcChing@reddit
MD Anderson is phenomenal. Do it. Also search out Dr. Patrick Soon-Shiong's facility in Los Angeles. His cancer research and treatment is amazing.
LadyNorbert@reddit
I'm so sorry. I hope you're able to get into the clinical trial.
Piscivore_67@reddit (OP)
Thanks
Winter_Throat3109@reddit
Oh I’m sorry to hear this! Thank you for sharing the information. I have no doubt that you have already helped others.
Piscivore_67@reddit (OP)
I hope so.
happymisery@reddit
I’m sorry this is happening to you and really hope you can get on the trial.
Fuck cancer.
Piscivore_67@reddit (OP)
Thanks.
kanvpark@reddit
My Dad was given 6 months and he opted to stop all chemo and go for immunotherapy. Well, two years later he is still here. The immunotherapy worked! He did develop diabetes, but that is under control now. Fasting is essential. I hope everything goes well. 🙏🏻
Piscivore_67@reddit (OP)
Glad to hear it, good luck and good health to you both.
vandervee@reddit
Glad to hear your dad is doing well. What kind of cancer did he have and what stage was it?
kanvpark@reddit
Thank you! It’s a blessing for sure. Prostate stage 4
thisisit122345@reddit
Maybe try Pluvicto if you haven’t yet. It can be very effective even if the cancer has spread.
Piscivore_67@reddit (OP)
That's the treatment that's not working for me. I get my last dose next week.
tee441978@reddit
Yes please get checked out. It took my dad away🥲 6 years ago today.
Piscivore_67@reddit (OP)
Oh, I'm sorry.
tyranopussy@reddit
I’ll be thinking of you and sending prayers….
Piscivore_67@reddit (OP)
Thanks.
Necessary-Peace9672@reddit
🙏🏼 Hope the trial is successful!
Piscivore_67@reddit (OP)
Thanks, me too.
Canaduck1@reddit
I have Gleason score 6 prostate cancer. I get PSA tests every 6 months, and regular urologist vists. He says at my young age, and the nature of Gleason 6 cancer, i could be in my late 70s before they need to treat it. But he's watching it just to be sure.
Piscivore_67@reddit (OP)
Glad he's on top of it. Here's hoping for a good outcome.
ItchyBlackberry722@reddit
My dad had the same kind and finally had to get treated at 75. Now he’s 80 and gets lots of follow up testing but all is looking well.
TripMaster478@reddit
My brother passed at 44 from the same thing. Just sucked it up and kept going until he fainted from the pain in the bathroom. It was too late to do anything meaningful about it by that point.
I'm now on a list that gets a colonoscopy every five years.
Piscivore_67@reddit (OP)
That was pretty much me, too. Sorry for your loss.
Fluffy-Structure-368@reddit
A colonoscopy doesn't detect prostate cancer.
TakingItPeasy@reddit
It's recreational.
Fluffy-Structure-368@reddit
Yes. I always request no anesthesia. That way I can enjoy it.
TakingItPeasy@reddit
See that - that's the best part. They call that the Kentucky Hug.
somecisguy2020@reddit
I get a DRE every year but make sure the doctor tells me he loves me first, and PSA levels checked. I also get an endoscopy and colonoscopy every five years. They call that a doubleheader and, because I’m not from Kentucky they use different scopes. Or, at the very least, do the endoscopy first.
JiveTurkeyII@reddit
Because of Eminem, I never forget about DRE
Good_With_Tools@reddit
They always do the endoscopy first. Even on the patient right before you.
TakingItPeasy@reddit
She said I was the only one!!!
TheCenterOfEnnui@reddit
The key is to get your sister to do it.
TakingItPeasy@reddit
Was there any other option? (Please say my aunt, please say my aunt.)
Retro_Dad@reddit
Maybe their family has BRCA1/2 mutation? That can result in aggressive prostate cancer in men, and has been linked to colon cancer.
acecoffeeco@reddit
Sorry to hear my guy. Not to sound fucked up but what’s changed knowing the end is near? Are you finding religion if you don’t have it or taking up skydiving? We all know we’re living on borrowed time but I’d think having an end date changes things. Good luck and I hope it comes quick and painless.
Piscivore_67@reddit (OP)
It's a good question. Not a lot changed from yesterday. I was diagnosed five years ago, so we knew this day was coming. I never had and expiration date like this before, I'm still processing that.
No religion, but my mom and I actually did discuss skydiving yesterday, lol. I've always been wildly acrophobic before. I probably won't, I have a catheter that would make things difficult.
I do too. My grandma died in her sleep. Here's hoping.
Fit-Meal4943@reddit
My dad’s prostate cancer was a particularly nasty strain, but was caught early in 2008 and the treatment succeeded.
My doctor has small fingers and a positive attitude towards lube.
Good luck, and live your best life whatever that may be.
Piscivore_67@reddit (OP)
I'm happy your dad had a good outcome.
Thanks
xrobertcmx@reddit
I hope you get accepted. And you aren't wrong, I have UC so have been getting scoped every other year since '01. It pays off.
Piscivore_67@reddit (OP)
Thanks. Good luck with your bowels, my friend.
Over_End_6816@reddit
Gents please get a simple blood test, and in it there is a test called a PSA test and it shows if maybe something is not right in your prostate. I had mine done, zero to four is normal, mine was 64. Also prostrate cancer. But since the prostrate is kinda sealed to a degree, if u catch it early, it can be dealt with earlier and easier, with better luck. I’m sorry to op. I hope you get the help you need. Fuck cancer.
onyxhrt@reddit
As the wife of a man who hates the doctor, thank you for these details. Hopefully I can convince him to get checked. And yes, fuck cancer.
Over_End_6816@reddit
Good luck to him. Also wanted to add, doc said if a man lives to be 80, there is 100% chance he already has prostate cancer, it’s just some other ailments usually are more serious .
Active-Persimmon-87@reddit
Most older men die with prostate cancer but not from it. Typical prostate cancer is slow growing without symptoms. PSA test is generally not done after age 70 as any cancer detected at that age is most likely not life threatening.
Felicity_Calculus@reddit
Depends on how aggressive the specific tumor type is, though, I think. My dad developed a very aggressive (8 on Gleason scale) but probably still localized tumor (no detectable mets on imaging) and they decided to have him do both radiation and hormone-blocking medications. This was at Sloan-Kettering, so I feel reasonably confident that it was a good treatment plan. He’s cancer-free almost 3 years later, but he unfortunately developed a collapsed vertebra due to bone weakening from the radiation. It can be hard to know what the best path is
MySpoonsAreAllGone@reddit
That must have been really hard to hear. I hope you get into the trial and everything works out for you.
Piscivore_67@reddit (OP)
Yeah. Harder still telling my wife.
Thanks
IgorRenfield@reddit
I get a colonoscopy every five years. They've removed polyps every time but all clear.
Piscivore_67@reddit (OP)
Here's hoping it remains so
bigredroyaloak@reddit
Good for colon cancer. That is not checking for prostate, though.
IgorRenfield@reddit
Good point and you're right. I do get the prostate exam as well even though both the doctor and I hate it.
bigredroyaloak@reddit
I’m sorry. So many medical tests are hard to tolerate.
JonCocktoastin@reddit
I want you to know I'm thinking of you and pulling for you!
Piscivore_67@reddit (OP)
Thanks
Modsmoddy-74@reddit
Thanks for sharing your story.
Unfortunately, PSA testing is rife with controversy. I see a lot of pro PSA posts here, so I encourage everyone who thinks PSA is a no-brainer to watch this. There’s plenty of info out there regarding the harms/benefits of testing. Anyone who chooses to do a PSA test should know what they are choosing.
https://m.youtube.com/watch?v=4A_Y42L0dMc
formercotsachick@reddit
I am so very sorry - we lost my FIL to prostate cancer about 15 years ago. I thank you for sharing your story, and I hope you experience a very different outcome. Best of luck with the clinical trial.
Reapr@reddit
Honestly, I'm tired
How long do I really have to keep on fighting?
lucian14@reddit
I am so deeply sorry to hear about your diagnosis and the incredibly difficult path you are navigating. Thank you for your selflessness in using your energy to warn others; your message is a powerful one and will likely save lives.
For everyone else reading: please, never skip a PSA test. Think of a high PSA reading as the "check engine light" for your body. It doesn't automatically mean you have cancer, but it is a clear signal that further investigation is required.
In recent years, there was a backlash against the PSA test due to concerns about "over-treatment." While it is true that not every case requires aggressive, life-altering intervention, the medical landscape has changed significantly. Today, urologists and oncologists are much better equipped to triage patients. They can accurately distinguish between those who need immediate action (such as surgery), those who benefit from lighter focal therapies, and those who only require "active surveillance." Do not let outdated debates convince you that this simple blood test isn't necessary.
If you are interested in learning more about risk reduction and modern treatment options, I have found these resources to be incredibly helpful:
Because my father and grandfather both had prostate cancer, I know firsthand how vital this information is. Sending my best wishes to the OP and strength to everyone else managing their health.
hikeonpast@reddit
Prostate Cancer survivor here. I’ll add that there are two ways that annual PSA bloodwork can indicate the need for a biopsy:
1). Absolute value. PSA levels naturally increase with age, but will be generally higher in someone with Prostate Cancer.
2). Rate-of-change. If you get annual PSA tests, you get a trend line for how much your PSA goes up each year. If that rate-of-change speeds up, it could also indicate Prostate Cancer.
It was the rate-of-change aspect that flagged my cancer. I had zero symptoms at the time, and “magic finger” exams did not indicate anything wrong. If it weren’t for the blood test and my doctor ordering it annually starting in my late 40s, the cancer would have been much more advanced when finally detected.
Because it was caught early, I had many more treatment options available to pick from.
lucian14@reddit
Very wise advice. Thanks for the additional info.
nizo505@reddit
It's amazing how many of the doctors I've seen are hesitant to do a PSA test. Keeping track of spikes is indeed a good way to indicate further testing is needed. My dad died of prostate cancer last year, and he ignored a PSA result several years ago that he should have followed up on.
Agreeable_Day_7547@reddit
I am so very sorry…but thank you for sharing your story. You just wrote a phenomenal PSA for all healthcare screenings we need to get done now! Our generation in particular should all listen and get all your health checks in before retiring and losing full health coverage. I took care of a father w ALS who didn’t pay attention to the divorce date & went over 30 days w/o health insurance and was stuck w just Medicare the rest of his life! That was so difficult. And it’s only getting worse. But the treatment you get when you pull out a Medicare card for somebody as opposed to a top tier insurance card is staggering.He was always a very proud man and it was brutal.
Emotional_Mess261@reddit
💕🙏🏻
BigRudy99@reddit
Would a yearly blood draw tell me what I need to know or are we talking fingers in butts?
SnowblindAlbino@reddit
Annual PSA tests are baseline indicators; they will look for spikes and at rate of increase. But if you have any symptoms (or rising PSA) they will of course do a simple digital rectal exam, which is simply to feel the size and "shape" of the prostate as another indicator. After that, it's usually an MRI which can see potential tumors, and then typically a prostate biopsy, which involves taking physical samples of prostate tissue via a series of hollow needles inserted through the perineum. Those four screening procedures (PSA, digital exam, MRI, biopsy) are as I understand it usually considered enough to distinguish between possible prostate cancer and BPH (which causes enlargement and urinary symptoms, but is not otherwise a problem).
Bottom line: any symptoms at all, start with your GP and then talk with a urologist.
BigRudy99@reddit
Well, I do a yearly blood draw, I was just curious about what trying to detect regularly looks like. Appreciate the info.
SnowblindAlbino@reddit
If you have no symptoms and the PSA is low/stable that's all you need to do, according to my doc.
BigRudy99@reddit
Yeah, but aren't the symptoms during treatable stages almost identical to an enlarged prostrate? Like, my urine stream has been pretty weak for years, but I'm also approaching 50. Seems almost like Pancreatic cancer where detection is often too late.
SnowblindAlbino@reddit
Yes, basically that exactly. Which is why you need to have more than just a PSA test if you have symptoms, and they will usually keep going up that invasiveness ladder to a biopsy if the results are inconclusive. Even then, a biopsy is targeted but only samples what it samples...it can miss cancer cells, so a "clean" biopsy doesn't necessarily mean cancer free, it's just a piece of the diagnostic puzzle.
ConversationBoth6127@reddit
Really looking at both. Need to get a baseline PSA test to establish if the number starts going up. The finger in the butt doesn’t often detect cancer but it can tell if your prostate starts changing in size which is a concerning sign.
Blood tests are trivial, and the DRE isn’t horrible. Doesn’t hurt, and it can be embarrassing but it’s not like they’re rooting around for minutes. It’s quick.
My best friend’s father is 11 weeks away from finishing chemo after almost two years of it plus testosterone blockers, radiation, and surgery to treat an aggressive prostate cancer. They caught his just as it started to metabolize, so he’s likely to make a full recovery, but it’s been a very tough treatment schedule. It’s well worth checking.
caller-number-four@reddit
In these parts, they do PSA screens only at the GP office. If the test comes back as possible cancer, then they send you to a urologist. The GP doesn't do the DRE anymore.
The thinking is the GP doesn't do them often enough to stay sharp on what to feel for where a urologist does.
Slight_Advertising_9@reddit
We're talking compressed-air colon-inflating camera waaay up your butt.
Sorry op, thanks for your important message.
SnowblindAlbino@reddit
Not for prostate exams...different entirely.
Consistent_Tower_458@reddit
They'll measure your PSA and if that's elevated, go from there. We just started a new program at the hospital I worked at. It's an MRI/US fusion biopsy that allows us to perfectly target areas of concern.
Piscivore_67@reddit (OP)
Ask your doctor, but I think the blood test is adequate unless there's concern. I didn't get tested, so my experience there is lacking.
cheerios22902@reddit
I had prostate cancer 3 years ago...I'm 77 There were no symptoms..I had surgery for removal ..went smoothly...I self treated with cannibus from a lab in anza, California...that gave me the boost I needed to prevent spread of cancer ...good luck everyone...don't put off treatment
Frigidspinner@reddit
did you have regular PSA tests? I guess that seems to be the most obvious way to detect it (speaking as somene who got a 10% increase in my number yesterday)
some_dude3645@reddit
Since my PSA is regularly high my Dr runs a "Free and Total PSA". And I do get tested every 6 months. I don't mind getting blood tests a few times a year if I can stay ahead of something
Independent-Scale564@reddit
What kind of check do I need? I’m in my mid 40s.
The-naughty-pirate@reddit
PSA urine test, and digital rectal exam (fingers in butt). I’ve had this checked annually since my early 40s because I used to smoke and I have family history of cancer.
stevemm70@reddit
They don't really do the digital exam anymore unless they suspect something. The PSA blood test (supplemented by a urine test if needed) is the standard now. If the numbers are elevated, then they go in to explore.
My wife is terrified of prostate cancer because her brother and one of our friends had/have it. I was thrilled when my urologist said he didn't have to stick his fingers in places on me that are typically exit-only. I'm sure he was thrilled too.
Sum1Xam@reddit
althius1@reddit
I'm guessing he has stuck his fingers in enough butts at this point it is literally just another day at the office.
stevemm70@reddit
The first time I had it done, when the doctor was finished I said, "Well I didn't enjoy that one bit." The doctor replied, "If you did, I wouldn't let you come back." I'm sure that was a standard reply of his.
The second or third time I had it done, the doctor handed me a box of tissues. I asked what it was for. He said it was for cleaning up the lube. I said, "Oh, I thought it was in case I started crying."
I try to make light of really uncomfortable situations. It's one of my best and also most annoying qualities.
vandervee@reddit
Start by asking your md to check / follow your PSA levels.
Objective-Pen-1780@reddit
How often should PSA be tested? And starting at what age?
vandervee@reddit
That’s a great conversation to have with your doctor. Generally for average risk the recommendation to start is age 50, for high risk it is earlier, 40-45. I believe it’s an annual test, but if it’s trending upward or increasing quickly then the tests may be done more frequently.
disclaimer: I am not a doctor.
Nervous-Rooster7760@reddit
I started PSA testing in mid-40s. Part of my annual bloodwork.
Bright-Form730@reddit
Colonoscopy!
They-Call-Me-Taylor@reddit
What were the symptoms you ignored?
sriracharade@reddit
Just fyi, prostate cancer is often asymptomatic unless it spreads. Very easy blood test to check for indicators, though.
marshull@reddit
Great question.
FloppyFerrett1@reddit
OP responded to this lower in the thread -
"Pain while sitting, weakness in my legs, urinary difficulties.
The first two I put down to obesity, the last one my history of kidney stones."
smiffer67@reddit
Thankfully being in Scotland we automatically get screened every two years after reaching 50.
well_uh_yeah@reddit
What’s the screening every two years? Full colonoscopy?
RainbowDarter@reddit
Blood test with a finger up your butt to check for prostate lumps.
well_uh_yeah@reddit
My doctors have all stopped the finger test. I asked about it and they said something about it not being accurate enough or something. I thought it was weird. Was never my favorite part of the physical but did give me some peace of mind.
Firstcounselor@reddit
That’s what my doc told me as well. He said there was no difference in detecting it with a finger test or without, as in highly unreliable.
Pmoneywhazzup@reddit
I've had two different doctors give me the finger in recent years. No, not fun.
Chemical-Carrot-9975@reddit
Colonoscopy is for colon cancer, not for prostate cancer. A blood test for PSA is screening for prostate cancer.
Regular_or_BQ@reddit
I think the OP is saying you have to show up to get the screening and he deprioritized it.
OP I hope you get approved for the trial and that it is a massive success for you. ♥️
Typingdude3@reddit
Typical European response. Completely tone deaf.
ThatDjAWK@reddit
I’m in my 40s and need to as well. If you don’t mind, what symptoms did you ignore? @op
ThatDjAWK@reddit
Edit: fellow Redditor pointed out symptoms. Ty
pm344@reddit
May I ask what were your stunting? Hopefully you get admitted into the test trial!
FloppyFerrett1@reddit
OP responded to this lower in the thread -
"Pain while sitting, weakness in my legs, urinary difficulties.
The first two I put down to obesity, the last one my history of kidney stones."
ThatDjAWK@reddit
Thank u
wormil@reddit
My doctor doesn't test anymore because insurance decided it was unnecessary.
aquarius-sun@reddit
I just looked and lab corp charges $69 and you can get them on Amazon for $20. There is no sane reason why this is deemed unnecessary
WTF INSURANCE
FloppyFerrett1@reddit
Sorry, a bit confused - you mean you can get an RX for blood work on Amazon for $20? Just trying to clarify, thx.
aquarius-sun@reddit
Just search for psa test on Amazon. It’s the cheapest option but there were others. Not rx needed. I’m in the US
FloppyFerrett1@reddit
Oh wow, thank you so much.
Pleasant-Minute-1793@reddit
Go find another doctor.
My grandma had colon cancer, my dad had polyps removed every time he has one, I just had my first colonoscopy and they found 4 polyps.
I told my brother (48) to go and his doctor told him he’d be fine for a couple more years.
Some doctors are idiots. Fire them and go elsewhere
Piscivore_67@reddit (OP)
Fucking American health care.
KM68@reddit
A nurse told me the the American health care system is the worst on the planet because its all for profit.
Good luck.
Piscivore_67@reddit (OP)
Absolutely true.
Renetia@reddit
How is it unnecessary if 1 in 8 men get prostate cancer? Are you referring to the PSA test? If you do yearly blood work, the PSA should be apart of those tests.
That's how they found out my husband had it. His PSA score doubled from the previous year. He had his RALP last August. Now he gets a PSA test every three months.
I think the out of pocket costs for this test may not be that high. Plus there is a prostate cancer sub that has a wealth of resources to look though.
ku_78@reddit
I’m heartbroken to read this. I posted a similar plea a year or so ago. (Gleason 8, stage 4a.) I pray you have a strong support system and you get into the trial. And also that you outlast the odds.
Melekai_17@reddit
How’s it going for you? Glad you’re still here.
ku_78@reddit
Thanks. Every day kicks my ass, but the treatment seems to be working. I have 12 more months to go.
Piscivore_67@reddit (OP)
Thanks
Piscivore_67@reddit (OP)
I have a fantastic support system.
Thanks. Fingers crossed.
ScarInternational161@reddit
I'm so sorry! My husband's biannual colonoscopy is at 10 this morning and his yearly chest CT (exsmoker) is next week. He has copd and is 60, we take it very seriously.
efflexor@reddit
I’m so glad your doctor does chest scans. My mother just died of lung cancer because her doctor never did one despite her smoking history.
Piscivore_67@reddit (OP)
Fingers crossed for a good outcome.
Disastrous_Cream_539@reddit
What symptoms should I look for? 48 here and never been tested but also don't have insurance. My paternal grandfather had it and was caught early but my dad has not.
sambqt@reddit
Call Planned Parenthood. They charge on a sliding scale and do prostate screenings. https://www.plannedparenthood.org/planned-parenthood-great-rivers/patients/our-services/prostate-cancer-screenings
They offer a lot of other health services and charge based on your income.
Disastrous_Cream_539@reddit
Valuable information. I always assumed they only did stuff for women. Thanks so much!
sambqt@reddit
They do a lot of great work. I once met a single dad that took his preteen daughter there for "the talk" about menstruation, etc. He couldn't praise them enough for the education they both received.
MySpoonsAreAllGone@reddit
I had no idea their services are also available for men. That's awesome.
WhiskeyDeltaBravo1@reddit
Nah, I think I’ll skip that one, thanks.
MarkItZeroDonnie@reddit
Sorry to hear brother. I know people going through it . It’s a bitch from your diagnosis down to terrible incontinence and sexual disfunction. I do PSA blood screening with my yearly physical, wondering if I should do more
SnowblindAlbino@reddit
Annual PSA tests are baseline indicators; they will look for spikes and at rate of increase. But if you have any symptoms (or rising PSA) they will of course do a simple digital rectal exam, which is simply to feel the size and "shape" of the prostate as another indicator. After that, it's usually an MRI which can see potential tumors, and then typically a prostate biopsy, which involves taking physical samples of prostate tissue via a series of hollow needles inserted through the perineum. Those four screening procedures (PSA, digital exam, MRI, biopsy) are as I understand it usually considered enough to distinguish between possible prostate cancer and BPH (which causes enlargement and urinary symptoms, but is not otherwise a problem).
Bottom line: any symptoms at all, start with your GP and then talk with a urologist.
bigwilliesty1e@reddit
If you're of age, just get a colonoscopy. The screenings can have false negatives. Colonoscopy is easy. You eat a bland diet for a few days, take the laxatives, shit your brains out for 8-12 hours, then propofol knocks you out for the procedure - best nap of your life and you get an actual visual check with biopsies as needed. It's a piece of cake. Worst part is the cleanout.
gothfru@reddit
Do colonoscopies check your prostate, too?
reddituser_05@reddit
No - this guy's an idiot. Just get an annual PSA and you'll be set - no finger probing, just a blood test - done.
Friendly_Fun101@reddit
That's excellent advice but a colonoscopy checks for colon cancer. Although a good doctor will do a prostate check (dre) while you're there. There is a simple blood test (PSA) that checks for a protein produced by the prostate that indicates there are issues.
Key-Low-3896@reddit
Can confirm that this is a rather accurate description of the colonoscopy process, especially the “shit your brains out” part.
Piscivore_67@reddit (OP)
I've had a catheter for the last five years, so... yeah.
Ask your doctor, but I think that's okay unless there's risk factors or problems.
No-World-2728@reddit
The PSA test along with other labs should detect it. Go to the doctor once a year and have your labs drawn. Start colonoscopies no later than 45.
xxMalVeauXxx@reddit
Sorry to hear this OP. And a good reminder to everyone.
Have you changed your diet by chance? I don't know the validity but there's a lot of research and sadly misinformation about diet with respect to diseases including cancer. But it's always worth looking into more info and if it would potentially be helpful or worth trying. The stuff I was reading about involved fasting, ketogenic diet, etc with cancer.
Best of luck.
donutello2000@reddit
STOP
My wife has cancer. Every fucking fool we come across is trying to tell us about some diet or remedy or quack science. People just can’t deal with the fact that someone else has cancer. They have to try to overcome their discomfort by pretending to help. All you’re really doing is implying that it’s the patients fault for having cancer. I think that makes people feel more comfortable about themselves too.
The cancer patient has doctors. They don’t need your advice. If you want to be useful, be there for them, offer to do specific things, and just show care and consideration. The thing they don’t need is your advice.
Epicassion@reddit
I ignored symptoms for colon cancer. Finally got my colonoscopy and had a large tumor, positive lymphs. Beat myself up as I was stage 3b. Sorry to hear your prognosis may be bad. I started to live a day at a time and focused on what was important.
I was fortunate to respond well to treatments but every scan and colonoscopy I had to prepare myself that it may not be. My thoughts are with you and hope you get into the trial. Chemo was wretched after 8 treatments and I would not blame anyone for choosing quality over quantity. Take care.
starmedicus@reddit
Can I ask which symptoms you ignored?
Epicassion@reddit
For colon cancer I put off the blood noted to hemorrhoids. It was too consistent for way too long and should have brought it up sooner. No pain even though the tumor obstructed my colon by 50%.
Piscivore_67@reddit (OP)
Pain while sitting, weakness in my legs, urinary difficulties.
The first two I put down to obesity, the last one my history of kidney stones.
TheChewyWaffles@reddit
Did you do the PSA blood screens annually? I ask because that’s what my doc does and I wonder if it’s enough to early detect prostate cancer
HillbillyEEOLawyer@reddit
I am interested to know as well. I switched from one giant healthcare conglomerate to another a few years ago due to insurance change so I had to change PC docs. New ones do the blood test, but not the old 2 finger test like my last docs.
SkweegeeS@reddit
Blood test is better!
HillbillyEEOLawyer@reddit
Piscivore_67@reddit (OP)
I didn't see a lot of my primary care physician. As another comment mentioned, obese individuals don't get the best care always. So just prescription refills mostly.
Now I get PSA checks twice a month. It's been going up a lot lately.
As long as you stay on top of those checks, that should be adequate. Just listen to your doctor and get regular checkups.
Athrynne@reddit
It was for my husband. I'm really glad he didn't skip seeing his doctor in the fall of 2020 for his annual checkup. His PSA number came up high, and he had early prostate cancer. Got radiation and he's all better now.
No-Stage-4583@reddit
I mean its a longshot - but you could boof rick simpson oil - it may help.
Sounds like your options are dwindling so why not try some cannabis concentrate?
Piscivore_67@reddit (OP)
Haven't tried that, but I use gummies for pain management.
I don't want to mess with anything the doctors haven't prescribed because I don't want to screw up my chances of getting into the trial.
Intrepid-Entrance460@reddit
YouTube channel about "good news" had a segment recently on clinical trials for VIR-5500. Not sure if it's applicable to you situation, but worth asking about. Keep fighting!
Piscivore_67@reddit (OP)
From the description I jyst googled, that might be it. I haven't read the paperwork yet the reasearch assistant gave me. Yesterday was a bit overwhelming.
Climboard@reddit
Sorry to hear this and thanks for the reminder. Best of luck on your path.
Piscivore_67@reddit (OP)
Thanks
whiterock73@reddit
I test my patients every 3-6 months (TRT provider). Caught several that have been overlooked or “rechecked in a year” and gotten to them before they spread. Easy blood test.
Piscivore_67@reddit (OP)
Awesome. You're awesome.
whiterock73@reddit
It’s over looked man. A “male cancer” that’s “easily treatable” makes most providers very nonchalant about it. It’s cancer. It’s fucking cancer. Doesn’t matter it’s typical progression. We deserve as much preventative care and testing as anyone. I think our generation being quiet and hard working makes a lot of us not report symptoms or concerns (because unfortunately, a lot of us are ) and most providers don’t ask. I hope your clinical trial is successful and you are posting about the experience 5 years from now. Stay strong man.
Piscivore_67@reddit (OP)
Thanks. I'm trying.
Onslaught7676@reddit
Sorry to hear that. Hopefully your words will ring loudly in someone else’s mind to go get checked.
Piscivore_67@reddit (OP)
I hope. This really sucks.
Lord_Nurggle@reddit
I have Stage IV Melanoma. Sorry your treatment isn’t working I know the feeling and it is horrible. I had a mole on my neck that my general doc said looked concerning.
Of course I was so busy with work and life I put it off.
Get all the checks.
Piscivore_67@reddit (OP)
Good luck in your journey.
Mangolandia@reddit
I’m so very sorry. I wish you luck getting into the trial and that it works for you. In any case, thanks for taking a moment from your personal crisis to give us caution. Fuck cancer
Piscivore_67@reddit (OP)
Fuck cancer indeed. Thanks.
Amberosia@reddit
I'm sorry you're going through this. I've heard nicotine cures a lot of diseases including cancer. It's worth a shot. Bryan Ardis talks about it if you want to look into it. Big pharma discredits it, but I would have encouraged my parents to try nicotine patches (or gum) when they got cancer had I known then. Take care.
Chemical-Carrot-9975@reddit
Sorry to hear this. I had my first PSA drawn last year, and thankfully, it was low. I hope you get into your clinical trial. Fingers crossed!
Piscivore_67@reddit (OP)
Thanks
green-neck802@reddit
Sorry you are going through this. Thanks for sharing your story
Piscivore_67@reddit (OP)
Thanks
BlownCamaro@reddit
Praying for you right now!
Piscivore_67@reddit (OP)
Thanks
MayShoe@reddit
I’m so sorry. Sending you much love ❤️
Piscivore_67@reddit (OP)
Thanks.
Motivated_Sloth_749@reddit
I’m so very sorry, fellow GenXer. Hoping you get into the clinical trial. And thank you for sharing your story and reminder to not ignore symptoms.
I lost my younger brother to colon cancer - he was diagnosed at Stage 4 - he ignored symptoms like chronic constipation. Don’t put off your colonoscopies!
Piscivore_67@reddit (OP)
I'm sorry for your loss.
AggravatingSmile101@reddit
Good luck to you, man. I hope and pray that you're accepted for the clinical trial. !!
Piscivore_67@reddit (OP)
Thanks. Fingers crossed.
shanshanlk@reddit
I am so sorry, I pray you are accepted. This administration has screwed everyone over. People cannot even afford insurance and people are dying for their greed.
GenX-ModTeam@reddit
No Politics - Political posts or comments of any sort are not permitted. If you wish to have political discussions, you may do so on our other sub r/GenXPolitics.
Breaking this rule may result in bans, either temporary or permanent.
Before you make the claim: No, providing respite from political discussions does not infringe on your rights.
Also, this politics ban was put before the sub over a year ago, and members have spoken.
TeaVinylGod@reddit
This one? I'm self employed and been screwed since the Unaffordable Care Act was implemented under a different administration.
I guess this and bailing out the elites were his biggest accomplishments.
Who thought letting the IRS run healthcare was a good idea?
GenX-ModTeam@reddit
No Politics - Political posts or comments of any sort are not permitted. If you wish to have political discussions, you may do so on our other sub r/GenXPolitics.
Breaking this rule may result in bans, either temporary or permanent.
Before you make the claim: No, providing respite from political discussions does not infringe on your rights.
Also, this politics ban was put before the sub over a year ago, and members have spoken.
deleted_by_reddit@reddit
[removed]
GenX-ModTeam@reddit
No Politics - Political posts or comments of any sort are not permitted. If you wish to have political discussions, you may do so on our other sub r/GenXPolitics.
Breaking this rule may result in bans, either temporary or permanent.
Before you make the claim: No, providing respite from political discussions does not infringe on your rights.
Also, this politics ban was put before the sub over a year ago, and members have spoken.
ciceroblues@reddit
Can you look into proton treatment? My 87 year old dad had stage 3 prostrate cancer and this miracle treatment knocked it out within 7 months
Piscivore_67@reddit (OP)
Yeah, it's what gave me back my legs, twice. The problem is, there are dozens of lesions all over my bones. Too difficult to get them all, and I cant take any more radiation. The treatment I'm finishing up was radiation based and it didn't work.
bcb1200@reddit
Sorry to hear man. Stay strong. Out of curiosity what were your symptoms that you ignored?
Piscivore_67@reddit (OP)
Pain while sitting, weakness in my legs, urinary difficulties.
The first two I put down to obesity, the last one my history of kidney stones.
PDXisadumpsterfire@reddit
I can’t help but wonder if your larger body size caused your healthcare providers to not pay appropriate attention to your symptoms. “Fat bias” is real and pervasive.
I didn’t realize how prevalent it was until I lost a total of 60 lbs with the help of a GLP-1 that I paid for (and still pay for) out of pocket. Looking back, I can see perimenopause and then menopause led over time to my unhealthy weight. M
But over 15 ish years, I asked my providers for help, telling them something was really wrong, and I received gentle lectures about self control, including a memorable one from my physician’s wife in which she proudly described reducing her ice cream intake to a few times a year. Super ironic bc I don’t really like ice cream and never have.
Piscivore_67@reddit (OP)
Oh, yeah. That's definitely true. I had one doctor assume I had diabetes (I don't) and tried to sell me on bariatric surgery, which wouldn't help me.
snyde21@reddit
I'm sorry to hear this and hope you're not in too much pain. If you're in a legal or MMJ state, look into RSO. I've seen a lot of stories online about it helping (if not outright curing) different forms. I'm not saying it will, but at this point why not try.
https://www.webmd.com/cancer/rick-simpson-oil-for-cancer-overview
Piscivore_67@reddit (OP)
I'm hitting the gummies every day.
Renetia@reddit
I'm sorry this happened to you OP. Praying that the trials work for you.
Piscivore_67@reddit (OP)
Thanks.
sofaking-cool@reddit
Sorry to hear that, friend. I have the same. 3 years in, hormone therapy seems to be working. I’m mad that my doctor never recommended a simple PSA test at my annual checkups. But I can’t complain now. Blessed to see the morning every day and hug my wife and daughter. Peace be with you.
Piscivore_67@reddit (OP)
Fingers crossed it keeps working.
Syfysamurai@reddit
Peace, friend
jk_pens@reddit
Thank you for sharing. May your road ahead be as easy as can be under the circumstances.
Piscivore_67@reddit (OP)
Thanks.
Nuclear_N@reddit
And by checked you mean the blood test. I think PSA? Or the examination. My PSA has been fine so the doctor skips the exam…which I am fine with.
Piscivore_67@reddit (OP)
That's cool.
Alarming_Hedgehog615@reddit
Sorry to hear that. I did my own exam and im healthy as fuck. I guess ill get a blood test if i ever go to the doctor again.
Piscivore_67@reddit (OP)
Good luck my friend.
DarthVader808@reddit
I’m sorry bud. I hope you had a great time while here.
Piscivore_67@reddit (OP)
It's had its ups and downs. I got to do a lot of neat things. Found my person, fathered a couple of kids. Saw the Great Wall, the Grand Canyon, Tokyo and Munich.
Available_Actuary977@reddit
What were the symptoms?
Kryceks-Revenge@reddit
I’m so sorry. Fingers crossed about trial. But we’re are all here for you regardless, even to pour one out with you in a year.
frankschmankelton@reddit
So sorry to hear that. All the very best to you.
dudeatwork77@reddit
I watched a YouTube video of a guy beating late stage stomach cancer. He fasted while doing chemo. Said sugar grows cancer cells and that not eating sugar made the chemo more tolerable. Might be worth a try.
urameshi907@reddit
My brother in law had success w this as well. He did chemo and some other treatments in addition to the fasting. His cancer is going away but now he's diabetic
Piscivore_67@reddit (OP)
I've exhausted what chemo can do for me already. Like five different combos of really nasty drugs. But thanks.
mrgtiguy@reddit
What were your sympathies
Piscivore_67@reddit (OP)
Pain while sitting, weakness in my legs, urinary difficulties.
The first two I put down to obesity, the last one my history of kidney stones.
WeirdFiction1@reddit
I'm so sorry you're going through this. Just got my check and my colonoscopy and will do so on schedule in the coming years. Truly sending you my best wishes.
AcceptableSuit9328@reddit
I’m sorry to hear this. Wishing you all the best.
realistdreamer69@reddit
Thanks for the PSA. It's appreciated! Sorry your situation, but glad you are trying to help others
Thirsty4Knowledge911@reddit
So sorry to hear this. Make the most of the time you have left.
Thanks for sharing your story as a wake-up call to the rest of us.
Piscivore_67@reddit (OP)
That's the plan.
Fizzletoe@reddit
What symptoms did you ignore?
Piscivore_67@reddit (OP)
Pain while sitting, weakness in my legs, urinary difficulties.
The first two I put down to obesity, the last one my history of kidney stones.
Top_Condition_6390@reddit
PSA every year.