What would happen to a disabled person after all family members die?

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SmallSauropod@reddit

If they’re in immediate danger of having nowhere safe to be they’ll be sectioned. Then the council will source a suitable placement. The councils have local funding, but if it looks as though their needs won’t ever really improve they can be assigned to Continuing Care which means the money is pulled from NHS funding instead.

Healthcare decisions will be made via a council rep, social worker & relevant NHS healthcare teams.

Financial decisions will be made by a similar team, but it will essentially just be their PIP being used as spending money for essentials and fun things.

If you’re elderly you’ll be placed in a council funded carehome placement with similar rules.

However the council will always choose the cheapest method, so odds are you would be visited by in home carers a couple of times a day for a while before any residential placements are considered.

Please speak to your medical team rather than the council, as Occupational Health can do a lot of things to assist with staying in your home as long as possible.

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Azyall@reddit

Your very first sentence is inaccurate. Someone with, for example, MS, CP or Downs would not be sectioned. Sectioning is exclusive to mental health, follows Mental Health Act rules, and requires the person to be considered a real and present danger to themselves or other people.

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Timely_Egg_6827@reddit

Friend became disabled as an adult and her family refused to accept care of her. Sounds harsh but best thing they could do as meant she went into state care. She did spend time in a hostel but was priority for accessible flat on guaranteed tenure. Some negatives to that- no choice as to utility suppliers etc but a nice flat, PIP and with that support she works. If parents had tried to support, the longterm outcome worse for her regaining independence.

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raccoonsaff@reddit

Social services. I mean, usually,, even if you're not on your own, if you're disabled, you will get some support from social services.

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Future_Direction5174@reddit

There is sheltered accommodation for disabled people who can’t be totally independent, then there are group homes for those who need care 24/7.

These homes vary in cost, and places are limited. This may cause a younger person to be placed with the elderly as this is the only place available right then and there (elderly care homes are a lot more common).

A friend has two intellectually disadvantaged children, both of whom have been living in group homes for over 20 years. She herself is now 84yo and lives in a retirement community as she is still fairly able bodied. Her daughter Miriam is now 63yo and quite happy in her group home. She has her own studio flat there but will panic when a lightbulb needs replacing, so can’t be fully independent. Her son Mark is 60, and whilst he was slightly better able to cope, he has now had a heart attack and is in a nursing home. Both are on benefits that covers all their costs. When my friend dies, then she is placing everything into a discretionary trust as neither is mentally capable of handling a substantial sum of money in a way that will support them for their remaining years.

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OkCaterpillar8941@reddit

If it is something that is causing you worry then start the conversation with your family member and social services. Then you can see what they want and what's available. A lot of assisted living accommodation will offer respite care so your relative could try some out.

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RafRafRafRaf@reddit

Mostly they end up in nursing homes or residential care. Some of these are fantastic, some are atrocious, but even the very best very seldom have the staffing/funding to enable any semblance of an individual independent life e.g. support for going off to do what they want to do on their own, rather than being cared for in a group with others.

Occasionally they’re lucky enough to get care packages to support them to keep living in the community - when the care package is right and the care planning is good (usually because the person has a really excellent advocate speaking up for them - might be a relation, friend, sibling, or staff member) this is an OUTSTANDING setup. I live in a purpose built accessible bungalow (am physically disabled, have significant care package funded by the NHS, which I mostly manage myself with some help from accountant, training provision company etc). My across-the-road neighbour(?) lives in the mirror opposite of my place has milder physical disabilities and very severe learning disabilities and has lived in his own home for more than 20 years since his mother’s death, with 24-hour support for roughly the last 15 or so. He enjoys a degree of individual freedom which similar people in care homes (and in their 50s or 60s as I guess Mr D is, they are almost all in care homes) can only dream of - he’s rarely home in the daytime, putters off to church, cafe, shops, garden centre, a learning difficulties arts and crafts session, something at the library I think, swimming now and then. He picks what he wants for tea every night. He has a bath when he wants one not on an appointed night of the week (but because he’s only ever looked after by the same team of 4, if he skips the bath too many days in a row, someone will talk him into it). He goes for little walks with his walker.

As a result he’s more active, ageing more slowly, healthier and far, far healthier than the vast majority of similarly disabled people - the same is true for me and my contemporaries in nursing homes, too, although I’m maybe 2 decades younger than D is.

The up front cost of the care is high (ish) but the overall cost, factoring in things like the MASSIVE savings in avoiding hospital admissions, amounts to a bargain.

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Difficult-Bet-2522@reddit

There’s a lovely community next to where I live where lots of disabled people who have lost their parents/aged out of children’s care live. Depending on level of ability they either have 24/7 care or just people popping in to do the things they can’t. All within their own self contained apartments. There’s an activity centre, gaming room and sensory rooms on site and lots of trips out/away/holidays for those who want it. It’s council funded and arranged via adult social services. Sadly this isn’t available to everyone but it’s nice places like this exist.

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liltrex94@reddit

I like the sound of this place. My sister and her fiance have twin autistic daughters, and they have an older half sister who is neurotypical. We often wonder what will happen to them once we all pass away, it is far too much responsibility for the eldest daughter. Who by the way absolutely adores them and is brilliant with them. But I think a supported living facility would be better suited for them and for the eldest daughter to be able to live her own life.

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kouroshkeshmiri@reddit

That sounds lovely thank you for posting.

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Ok-Salad-935@reddit

Care home or supported living

This is normally done through a social services referral

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Away-Ad4393@reddit

Assisted housing

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roxieh@reddit

As someone with MS who lives alone, I will let you know 🤣

I actually have fears about this and I have no idea what might happen if/when I'm too disabled to care for myself. I think I would contact my local council and go from there.

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Internal-Hand-4705@reddit

They can find you a care home for some support - I’m not saying it’s paradise but they legally can’t just leave you to die from neglect

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roxieh@reddit

Oh well that's good to know! Well I'm young yet and on a good drug so maybe I'll generally be fine, who knows. Good to know I can't just be left though 😂

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Internal-Hand-4705@reddit

Best wishes to you from another disabled person (3 strokes) - MS is at least more treatable than it used to be! Hopefully it will never come to that but they 100% have a duty of care to make sure your basic needs are met

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PatTheCatMcDonald@reddit

Depends on the severity of disability and the local authority were they live.

If you live in a deprived area, there isn't much of a budget to pay for you.

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Suluco87@reddit

You're supposed to have intervention as there is a hand over of services as you're known to the system. The reality is it completely depends on your local authority funding and what they think you need and with budget cuts that's a very big variable.

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Icy-Belt-8519@reddit

I've been to lots of people who their carers are getting older and are unable to cope now and they don't have plans going forward

We often put in a safeguarding refferal, it's not scary, it's not because their carer is doing a bad job, it can be anything from having occupational therapy putting in grab rails all the way up to organising care homes and everything in between

Some people can cope with 2 carers 4 times a day with home adjustments, some people would need a care home, some a nursing home

I hate to say I'm sure there's a few people who fall through the cracks, but there is definitely help there and options available

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Familiar-Tune-4U@reddit

If my dad died, I'd probably kms, ngl

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Huditut@reddit

If the person is unable to live independently with carers, then they will be sent to the nearest crisis bed available. This could be anywhere in the country. The likelihood of them returning to their hometown depends on who is still there to fight for them.

Most adults with profound disabilities are already known to Social Services. They'll also (hopefully) have some sort of care already in place, even if it's a day or two at a day service. If so, they will (hopefully) have someone familiar, such as a caseworker, to fight for them to stay local for familiarity.

In reality, if you have no voice, you disappear into the system and become just another figure on the Social Care report.

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sock_cooker@reddit

Adult social services should be involved long before that eventuality. In my experience, they will be in either supported living with other disabled people or in nursing/residential care. They will have a "patient advocate" who acts as a proxy for a family member to make sure they are given the right kind of care that is appropriate to their wishes- usually a volunteer.

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casual-chatterbox@reddit

Social workers will be supporting them. Initially, they will stay in a holiday respite designed for people with learning disabilities until a new home is found for them.

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GrandeTasse@reddit

1) They take your house

2) They put you in a skanky facility miles from anywhere and smelling of stale urine and overbooked cabbage. They take all your pension to pay for it.

3) They ignore you, if you are lucky.

4) If you are unlucky some corrupt pinhead Health Secretary discharges Covid-ridden patients from an inadequately resourced NHS hospital and into your facility

5) You die before your time.

Welcome to the new 'cradle to the grave' care you paid all your working life for.

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SingerFirm1090@reddit

In most cases there would be a care plan in place, though obviously there are exceptions, and the local social services would be aware of the disabled person already.

It probably happens more than you think, a child with some form or physical or mental disability living with parents until they pass or become unable to care for the child.

Hopefully the police need not be involved, but in extrement situations they or thr ambulance service would refer the case to social services. If you watch "Ambulance" on the BBC this does happen.

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faerycvnt@reddit

Something my disabled ass tries not to think about

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Mrslinkydragon@reddit

Dependent on needs, usually social housing.

You might just have someone pop in a few times a week to make sure youre okay/do tasks you cant (eg reach stuff or help with shopping)

My partners uncle is like this, my partners mum checks in on him a few times a week, brings his shopping and such.

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Cosmicshimmer@reddit

Local authority would step in. Adult social care.

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Intelligent-Guess-63@reddit

I know someone who this happened to at a young age. Father died in an accident when they were about 10, mother died suddenly of Covid when they were 16. Undiagnosed autism as the mother tried to ‘protect’ the child from being labelled. 16 year old left alone at home, bereaved. Parents both only children so nearest family was a second cousin.

After a few months a friendly neighbour got in touch with a church group, that led to social services. About 6 months on a charity stepped in, rehoused the 16 year old in a supported living set up with 24 hour carers on site. I think he’s doing ok now with a part time job. It was difficult at the time.

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Dissidant@reddit

2005 mental capacity act means even if you don't have capacity to make decisions for yourself there are supposed to be safeguards to ensure decisions made on your behalf are done in your best interests i.e. through third parties such as IMCA's (independent mental capacity advocate) who can be appointed to ensure the patient is still involved

How that translates to real world in varies in mileage given everything has been cut to ribbons

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Pedantichrist@reddit

A package of care, safeguarding and, if they lack capacity, representation by the lines of charities and organisations such as [LOD](https://www.livingoptions.org].

There are lots of people in this situation.

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falkorluckdrago@reddit

I started to work as support worker for a supported living accommodation for people with mental disabilities. And it is lovely, is one of the most fulfilling jobs I ever had. The tenent’s are lovely and they have really cool lives full of fun activities. They go out nearly everyday, some have activity groups or lessons some of them have jobs.

They choose what they want to do and we support them, including weekly shopping, finance, daily meals, medication, holidays, special activities like theatre or gigs . Everything is financed by their benefits and we help budgeting, but it is person centred and they make their decisions. We have a great manager and great team and everyone makes sure tenants are happy and well look after.

It is very sad when the parents die, one of our tenant is elderly and have lost both parents years ago, but she is well cared for.

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Holiday-Poet-406@reddit

Ambulance service would usually refer to local social care when the carer was taken away dead or alive.

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Spam_Frittering@reddit

Reminds me of A Cream Cracker Under The Settee - a superlative yet heartbreaking sad Alan Bennett monologue featuring an old lady (Thora Heard) who has lost her husband and is childless, yet so afraid of being moved out of her house and put into a care home.

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